| | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Jun 2007 Posts: 214 | I read through your daughter's blog---her positive attitude is nothing short of amazing. God bless her!
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
| | | | | Joined: Nov 2007 Posts: 13 Member | | OP Member
Joined: Nov 2007 Posts: 13 | Thank you all for your lovely comments. The days can be hard sometimes, but coming here and reading your kind words, takes the edge of those days. :-)
Hayley is doing ok..she is having some problems with her PICC line, has pain in her arm, and sometimes feels a little pain where the line is over her chest. We spent a good few days back and forth to the hospital last week and Monday of this week, with PICC line probs. Hayley has been taken off the warfarin and now she is to inject herself daily with CLEXANE enoxaparin. We are now waiting for her to have a doplar (sp) scan as she has found a pea size lump in her left arm pit. She has been checked out and has been told that it isn't in the node area and does not feel like anything untoward. They say it COULD be a blood clot (?) hence, them giving her the injections now. It's still a worry though. I have just come off the phone from the hospital as I rang to find out if they had made any arrangement for the scan. I'm now waiting on them to call back to let me know what's going on.
Arrggghhhh!
oh, and we had a call yesterday to say that Hayley is scheduled to have the PEG tube in on 25th Feb 08. She isn't too happy about that but agreed!
Please continue thoughts for my girl..
I too, continue thoughts of you all here on the site.
Mandy.
Mother to Hayley 18, who was diagnosed on the 20th November 2007 with SSC /T4 Throat Cancer. Now in remission as from August 2008.  | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im sorry to hear Hayley is having a rough time with the picc line. I will keep both of you are in my thoughts and prayers.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Nov 2007 Posts: 13 Member | | OP Member
Joined: Nov 2007 Posts: 13 | UPDATE:
An appt for tomorrow at midday has been made for Hayley to go for an ultrasound then back to see Doc at Chemo unit to go through the results.
<fingers crossed>
Mandy :-)
Mother to Hayley 18, who was diagnosed on the 20th November 2007 with SSC /T4 Throat Cancer. Now in remission as from August 2008. | | | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Mandy,
I've been thinking about you both. I tried sending her messages on her site but for whatever reason they didn't go through.
So happy to read all is going well. What a great spirit your girl has!
Donna
Last edited by Donnarose; 01-23-2008 04:14 AM.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Give Hayley my best ans she is in my prayers, What a tough kid!!!
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Hope all goes okay for Hayley at her appointments, thinking of you,
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
| | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Thinking about you and Hayley and waiting for an update.
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Nov 2007 Posts: 13 Member | | OP Member
Joined: Nov 2007 Posts: 13 | Hi everyone! Update on Hayley - the ultrasound went well - and nothing was found! Hayley told me this morning that she felt for the lump and it had gone. Docs say couldn't really say for definate what it was but she is to carry on with the anti biotics and the CLEXANE injections. We are back at the hospital again tomorrow for PICC line flush and bloods to be done. Hayley feels fine in herself, she is eating really well and maintaining weight - the only time she doesn't eat much is when she is going through chemo. Her 3rd cycle of chemo starts Monday - till then, she has a busy schedule - tomorrow she is meeting up with another journalist from the local newspaper (4th article) and then on Saturday we have been invited to our local radio station to talk about her blog ( www.kickingcancersarse.blogspot.com) and her cancer journey she is on right now - plus the fundraising occassion we are putting on (15th March 08) - to raise funds for the Chemo unit she attends. We want to raise awareness in the younsters that oral cancer is happening NOT just in the upper age ranges (trying to be polite here ) ;-) My hubby and I are in the process of putting a website together for the fundraising event, for people to follow etc. Also, wonderful people have donated and have asked to be informed of the event so we thought it would be a good way for them to follow what's going on. I hope it's ok to share this with you - I only really bacame aware of oral cancer because of my own daughter being diagnosed by it..and I so wished i'd of known symptons sooner so that we could of taken her to the doctor sooner, and it wouldn't have been advanced. ..it breaks my heart knowing that this is happening to my daughter, to all of you, and will be happening to others still. Evil disease - I can't do much but if I can help by making people aware then I will do what I can. Smiles and thoughts coming your way, Mandy :-)
Mother to Hayley 18, who was diagnosed on the 20th November 2007 with SSC /T4 Throat Cancer. Now in remission as from August 2008. | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Mandy:
You and Hayley are such and inspiration! Its great to hear Hayley is doing so well. I wish you the best of luck with the fundraising. Keep the updates coming.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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