#67984 01-20-2008 02:53 PM | Joined: Jan 2008 Posts: 82 Senior Member (75+ posts) | OP  Senior Member (75+ posts)
Joined: Jan 2008 Posts: 82 | I completed radiation 10/19/07 and didn't get a PEG tube until 10/26/07. I didn't want one, thought I could get by without one... but found out I should have gotten one in the beginning. I lost a month or so during the latter part of October, and the time before Thanksgiving... somewhere, somehow, and during it all I lost about 60 or so lbs... at the beginning I thought I was going to be able to do this and work at the same time. It only took me about two days to realize that wasn't going to work. I suppose the long and the short of it is this long, drawn out process seems to go on forever... I just need to know there's an end in sight. At times I'm complacent to sit and wait, but at others I want it NOW... I'm learning patience myself, among many other things. God bless us all.
John - Proud to be here...
Hemiglossectomy 08/02/07, 4 lower molars extracted prior to 6 weeks IMRT 09/10/07-10/19/07, SCC w/met to L neck lymph nodes, rad only, no ND. PEG 10/26/07-02/05/08.
"We're all in the same boat in a stormy sea, therefore we owe one another a terrible loyalty."
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Its a real shame you didnt find us back then John but as they say all is well that ends well and its great to have you here.
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | John,
I'm sure you will hear from more survivors like me but we all felt like you and I will tell you that you will get much much much better but it will take many many many months of almost imperceptible improvements. Please don't watch the Pot Boiling because it's not like getting over a cold or the flu. You will gradually see improvements to your taste, dry mouth and strength. and stamina but as your post Title suggests...BE PATIENT, PATIENT
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Amen David as I have learned over the past 5 1/2 months. It all takes time.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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