#6789 02-03-2006 01:12 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Glenn,
Sorry you and your family are being subjected to this horrible disease. I hope your mother has made it through her surgery although I am sure she is still having a rough time at this point. I am hoping for the best possible outcome for her.
She is so fortunate to have you by her side.
Best wishes.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#6790 02-04-2006 11:30 AM | Joined: Feb 2006 Posts: 8 Member | | Member
Joined: Feb 2006 Posts: 8 | Ian Gawler's "You can conquer cancer" was a lot of help for me during and after treatment. Not a book about "curing cancer" but about things you can do for yourself and how to get the best from the people that are supporting you. All the best.
kem
scc rt tonsil, T1N2A, primary excised with radical neck disection, 35 radio trtmnts, 1x cisplatin.
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#6791 02-08-2006 04:51 AM | Joined: Jan 2006 Posts: 7 Member | | OP Member
Joined: Jan 2006 Posts: 7 | Thanks all. So far everything is going well. Mom should be coming out of the hospital in another week and the trach has been getting smaller. Hopefully she won't need it when she is able to come home | | |
#6792 03-06-2006 04:23 AM | Joined: Jan 2006 Posts: 7 Member | | OP Member
Joined: Jan 2006 Posts: 7 | Update. My mother finally cam home this past Wednesday. She looks and feels great. She mentioned that this is the first time, in quite sometime that she is not in pain (mouth). She has also stated that she is hungry. This hasn't happened before. She has a feeding tube as they do not want anything going into her mouth during the healing process. | | |
#6793 03-06-2006 07:14 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Glenn, I apologize for not catching this sooner but that book is on the "non-recommended" list at Quackwatch http://www.quackwatch.org/00AboutQuackwatch/altseek.html
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#6794 03-08-2006 03:55 AM | Joined: Jan 2006 Posts: 7 Member | | OP Member
Joined: Jan 2006 Posts: 7 | | | |
#6795 03-08-2006 06:42 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Glenn,
Glad your mother is home and doing well. Keep us posted and yell if you have an questions.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#6796 03-08-2006 08:15 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Hi Glenn, that's really good news about your mother. Hunger is always a good sign of health and healing..
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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