#50443 12-12-2007 05:07 AM | Joined: Mar 2004 Posts: 98 Supporting Member (50+ posts) |  Supporting Member (50+ posts)
Joined: Mar 2004 Posts: 98 | Brian are you sure that the interview isnt already published in tv guide ? I do not have a copy here, but in the post I found which was at an a Another World message board the poster said it was in the current issue.
Was Primary caregiver to my mom who had stage IV, SCC, Supraglottic with Mets to 4 nodes. Diagnosed Feb 04, died unexpectedly from complications from treatment December 17, 2004.
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#50444 12-12-2007 05:15 AM | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 65 | I was told the pub date was to be the 17th, but they may have put the story out early. If that is the case OCF can now do our own press release to get some attention for the disease in other venues.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#50445 12-12-2007 07:26 AM | Joined: Jun 2006 Posts: 22 Member | | Member
Joined: Jun 2006 Posts: 22 | I followed the link above and watched the TV interview with Colleen Zinc Pinter. I was pleased to see the clip from when she is back at work acting on As the World Turns - in the scene she is giving out to somebody and speaking quite fast with only a very slight slur. I am really proud of her - giving it socks and to hell with the impediment.
I have the same sort of slur sound when I try to speak fast (just imagine Colleen with a bit of an Irish accent). I hope I can regain my clarity of speech to the extent that Colleen has. I am inspired to try harder with the aul tongue exercises! And get a part on a soap opera! Wellllll maybe that would be stretching it.........
Redser
SCC of the left lateral border of the tongue.Partial glossectomy multiple nodes removed 01/06, T2/N0/M0.1 week Brachytherapy 04/06.Modified Neck dissection 1 node 06/06,negative. New ulcer 11/06,non cancerous, HBO treatment 01/07 to 03/07. 2007-2008 had speech therapy and voice training.OK now!
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#50446 12-12-2007 03:49 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I just watched Colleeen's interview. She is quite the lady and she got OC some publicity. I bow to her.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#50447 12-14-2007 11:29 AM | Joined: Mar 2004 Posts: 98 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2004 Posts: 98 | Brian i just wanted to let you know that the article in tv guide is out. The magazine is dated the 17th but must of got put out early.
Was Primary caregiver to my mom who had stage IV, SCC, Supraglottic with Mets to 4 nodes. Diagnosed Feb 04, died unexpectedly from complications from treatment December 17, 2004.
| | | | | Joined: Mar 2004 Posts: 98 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2004 Posts: 98 | Yesterday at the end of the show, Colleen did a psa on Oral cancer and they gave an address to the OCF. I only hope that with the writers strike this storyline does not get lost.
Last edited by Karenmm; 01-17-2008 05:35 AM.
Was Primary caregiver to my mom who had stage IV, SCC, Supraglottic with Mets to 4 nodes. Diagnosed Feb 04, died unexpectedly from complications from treatment December 17, 2004.
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 65 | It will not get lost, it means to much to Colleen. As The World Turns donated that valuable (sellable) time to play the PSA for free, as well as the staff to film that one, and three others of different lengths. OCF will be distributing a 30 and 60 second version to stations across the US. This is expensive, but an important opportunity to reach the public with the early detection message.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 Likes: 1 | Are these viewable online ?
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | | | | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 65 | Not yet, but when we get our final copies for distribution we will add them to our other PSA's we have done on the multimedia page of the main web site. If you haven't seen Blythe Danner''s, or Jack Klugman's, go there and have a look see.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jan 2008 Posts: 82 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Jan 2008 Posts: 82 | Yet another reason I wish I had found this site earlier, MUCH earlier. I think I will personally place pamphlets myself... I will make darn sure my ENT and PC know about this site by next visit.
John - Proud to be here...
Hemiglossectomy 08/02/07, 4 lower molars extracted prior to 6 weeks IMRT 09/10/07-10/19/07, SCC w/met to L neck lymph nodes, rad only, no ND. PEG 10/26/07-02/05/08.
"We're all in the same boat in a stormy sea, therefore we owe one another a terrible loyalty."
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