#67340 01-12-2008 01:31 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | OP  "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | 'in your face' by Lia Mills
My daughter-in-law read a review of this book in OK magazine and ordered me a copy--I've found it absolutely compulsive reading--it's based on the diaries she kept during symptoms/diagnosis/treatment/recovery from OC. Just need to share this quote with you:
"Cancer. The crab. I know it's inaccurate to link the star sign with the disease but it describes the way I imagine my tumour perfectly: hard-shelled and ugly, flesh-coloured, swelling and sucking at my cheek. Then those pincer-nips, the vice-like grip clamped to my mouth, dragging me down into that sink-hole of soft gloopy substance, half-water, half-sand, created by low tide; the kind of substance where life begins.
There is something about this tumour's being externally visible. People look for the swelling on my cheek then their eyes jump away."
A lot of it is like reading the questions/answers here on the boards from every category--and it was Minnie and her girls who kept springing to mind as I read it!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Brenda,, I would like to read the complete book and will get it for my time of taking it easy.. Thanks for sharing..
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | It's so good---even including a scenario when she had to tell her friend to stop the car off the motorway as she needed so desperately to poop--did it on the grass!
And it's kinda all written in 'layman's terms' I'm on my second time around of reading it.
She's Irish, beautiful descriptions of scenery, Health Service seems to be pretty much same as in England--she details waiting times, lack of referrals etc. and includes all her 'family life' stuff,including pets (hence the reference to Minnie and co!) and everything about treatments, despair, hope etc.
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
| | | | | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | I would LOVE to read it , However I am having a hard time finding it in the US. I will have to order it from the UK or Ireland. Which is Fine ..But I am not sure about the Money Conversion.
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Sharlee - Maybe you could get it at the library from "Interlibrary Loan"? I used to get books all the time that were not in stock or out of print from the Interlibrary Loan department at our University Library. This link suggests places you can buy or borrow it from and Amazon is listed:
http://books.google.com/books?id=MvgiGQAACAAJ&dq=%22In+Your+Face%22%2BLia+Mills
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Jon and Lisa ordered it for me from Amazon
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
| | | | | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 214 | This sounds like a great book to read. Thanks Brenda.
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | On my way to amazon. Thanks for the info. Have a great day all.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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