#6699 01-15-2006 05:07 PM | Joined: Feb 2004 Posts: 218 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Feb 2004 Posts: 218 | Hi, On Sept. 19, 2004, a news story was posted to the OCF news section about long-term use of NSAID's (non-steroidal anti-inflammatory drugs) reducing the risk of oral cancer. see http://www.oralcancerfoundation.org/news/story.asp?newsId=282 Today, a follow up story was posted stating that the orginal study was based on 'invented' data. Apparently, the researcher, Jon Sudbo, a Norwegian cancer expert, made up data for at least 250 patients in a trial size of 908. You can read the details: http://www.oralcancerfoundation.org/news/story.asp?newsId=1103 News like this makes me think that one should not over emphasize the results of any one study and that reports of breakthroughs need corroboration- Sheldon
Dx 1/29/04, SCC, T2N0M0
Tx 2/12/04 Surgery, 4/15/04 66 Gy. radiation (36 sessions)
Dx 3/15/2016, SCC, pT1NX
Tx 3/29/16 Surgery
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#6700 01-15-2006 06:17 PM | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 65 | With the recent revelations in the stem cell world and now this, you have to wonder who is watching the store.... Having been a co-author of a peer reviewed implant textbook, I know what the scruitany is like to get things published, ditto my many years of lecturing on implantable device prosthetics. Shel, thank you for being on top of this for OCF, and please see that the original article is taken out of our news story archives. Your comments that singular studies, and as we have said here before studies that are preliminary in nature, are not something we should put a lot of weight on until the trials are replicated and continuing study shows that besides the initial positive response, there is no long term negative consequenses to whatever is being promoted.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#6701 01-16-2006 03:01 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | wow. thanks for updating us on that here. I think "invented" data is probably the hardest thing to catch in peer review. And thank goodness it doesn't happen too often (though this on top of the stem cell thing makes me wonder how many others there are no one knows about).
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#6702 01-16-2006 04:09 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | There are people out there that will use their credentials for financial gain. Who knows the reason?
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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