| | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | Ditto to what Gary and David said;
at the very least have a backup plan.
I was capable to drive drive to the rad TX by myself, although on 4 or 5 occasions during the first 2 weeks I had my brother or wife come along. Naturally, they were driving then. The fact that I did this provided some activity (which was good especially later on when you do not feel that you have any control). However, be especially careful if you use heavy pain killers! It is not a good idea to drive if you are knocked out! It would be very bad to have an accident during RT. My round trip was 40 miles and that with little or no traffic.
On the more funny side... the only time I ever managed to get out of a speeding ticket was when I was on my way to for an IMRT treatment. (Officer give me a ticket or do not, but whatever you do do it quickly please I need to go for radiation therapy for cancer and I am late; that is why I am speeding.....)
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 |  Oh Markus - I can't stop laughing at the picture under your name. Everytime the penguin gets knocked over it sends me into a fit! But he just gets up and keeps on going and keeps on getting knocked over! Now, that should be a lesson to all of us who keep fighting the big "C". Thanks for making my day!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | Anne-Marie,
I am glad you liked it. This sequence made the round on the internet a couple of years ago and I was surprised to find it on the new OCF website; so naturally I had to grab it.
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Thanks for the advice all and david,, I bet I'm as hardheaded and stubborn as they come.. LOL Older than you or not. I have always been independant and hope I can make this interstate even it has a very high accident rate David I like your humor . You have given me quite a few chuckles. You old turkey neck LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | That's MR Old Turkey Neck to you !!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LOL Mr turkey neck it shall be, I hope we keep our humor through out this garbage and can always laugh.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I'll have to check on that Gary. The senior center does take people to medical appointments so I'll check that out too. My trips will be just short of 60 miles but it's worth looking into . Thanks for the info.. And David,, I just can't picture you as antisocial LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Jim,
More like a badger. I felt anger for getting cancer. I felt ashamed for being sick and weak in front of my wife and family. I was scared that I would die. So I just wanted to be left alone to deal with all this myself. I didn't want the kind neighbors and friends offering me all sorts of suggestions, opinions and help. Just leave me alone...take my subtle hints and go away but if you persist then I'll lash out at you because I am angry and hurt. Geese, I'm getting all worked up. Where's an employee I can take it out on !!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LOL David, I understand those feelings very well. Send me one of your employees so I can vent too. have a great day.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | OP "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Well I had my first Cisplatin treatment yesterday and was a bit surprised at how they do it - so maybe I need to learn to read?? I had 2 hours of hydration, then the cisplatin, then another 2 hours of hydration. I then had to go back today and am due there tomorrow for hydration. I have had no nausea - am taking Kytril? and another drug that starts with a "p" and ends with an ozone or some such. So far so good. My radiation treatments seem to be taking forever as they are still taking multiple x rays and images to get the next 31 treatments lined up/confirmed. Makes me feel a bit uneasy and I thought they had done this before - but they say it is normal with some new procedure they are doing. I'm all for advancement and if I hadn't had radiation before I guess I wouldn't think anything of it. Just wanted to let you all know how it was going. So far, so good  Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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