| | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | David,
Interesting about the class of first year docs. Nothing like a patients perspective..someone who has walked thru the storm. Good luck...I hope it gives even one med student the onus to properly dx oral cancer.
I knew that you had all your treatments at Moffitt and that you saw Trotti as your RO. I was just curious if Trotti is who you consult for you followups and who orders your scans. In other words, to your knowledge does the H & N Clinic at Moffitt have a protocol for this??
We saw Drs. McCaffrey and Trotti initially and while I have the upmost confidence in Dr. McCaffrey, I connected with Dr. Trotti better and it was he who called us with the Tumor Boards summation of Bill's case and he who gave us full confidence that we would be fine receiving treatment with our local RO and MO. Because the local ENT who dx'd and biopsied is the weak link in our journey (insurance provider driven) we chose to go to Moffitt for a second opinion and now for follow-up. I am happy to have them in our court for the "next step."
Tks, Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 |
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Deb,
Yes Trotti oversees my post Tx followup. He has been at least in the loop on all decisions. I saw three different docs at Moffitt. Dr Trotti, my RO; Dr Padhya who is Chief of Oral Surgery (he found my primary)and Dr Tan, short for Tanvenyettan, my MO. Some initial scans were ordered by DR Tan and some by Trotti. I used to see all three every couple months with blood work each time and a scan thrown in every so often. Now I only alternate between Trotti and Padhya every 6 months or so and I haven't had a scan in probably 6 months or so. They still love to scope me which I enjoy now as much as I did the first 200 times !! I really like all my docs and their nurses and I never saw anyone else. Trotti is the type that you can diffently talk to and ask him any question about Bill's recovery Tx at Moffitt. I remember complaining to Trotti once about the lack of coordination within Moffitt when I had to be admitted to their hospital overnight as the hospital docs didn't even seem to know that I was a cancer patient being treated as an outpatient. Within a day or so the President of the Hospital called me at home and talked to me for over an hour asking me for my suggestions.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | |
| Forums23 Topics18,247 Posts197,132 Members13,319 | | Most Online1,788
Jan 23rd, 2025 | | |
|
