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Excellent thread to start Minnie!
Bill---why try and understand dorks??? I now 'tell it how it is'
My previous, carefully ordered, politically-correct life is totally out of the window!
If I spend a day in night-clothes--so what??
If I bump into an ex-pupil in town on way back from hospital, I smile and say 'Don't feel too good' and move on--instead of spending 10 mins chatting, asking them how they are and boosting their ego. I might, or might not , have made a difference to them whilst I was teaching/counselling them--nowadays I CAN'T! I'm not God!
The expression 'Life is too short.....' definitely kicks in!
(Actually, have NEVER stuffed a mushroom for those who know what I'm talking about!)
Brenda


Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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I would have to say I have changed ALOT over the past year , in both good and bad ways.. I do stand for what I believe in much more and have reprioritized my life. I am def much more fearful then I have ever been ...

But I try to learn new things daily ...while I def used to be more dependent ( finacially ) and I am working so much harder to be Independent, for fear of losing the independence ( for whatever reason) .. Yea I would say it has changed me , and so would everyone around me .

Shar


Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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Hi Minnie,
I guess I have changed in the other direction. I couldn't tell you the last time I have had road rage, I found out I can take my time and not let things others do effect my mood. I even find myself waking up early on days I could sleep till noon just to see the sunrise, they have become more presious to me as have the sunsets. I guess life means much more to me now and know how it can be jerked out from under you in an instant.


BILL
T1 N2B/N3 scc rt tonsil
8 taxol/carboplantin
33IMRT with 6taxol/carboplantin
last treatment will be 3/28/2007!
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Bill - your mention of road rage reminded me of a friend I visited in Mexico last year. Any time someone else's driving habits appeared less than perfect, she would get so excited and I would always remind her that maybe that person's wife was having a baby and trying to get to the hospital or maybe going for a Rad tx, etc. It kind of diffused the rage until the next road rage opportunity. More than ever now, AC (after cancer) I try to watch out for stressed out drivers and give them a little kindness.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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Bill,

You have employees in Florida.....I rest my case!!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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That's why I lost Barb,, she just didn't use her coomon sense when it came to good old OC and didn't undersatnd how it could work on your mind and change your personality for a couple of months. Even after hearing and reading posts.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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OOOh Jim that was a bit sharp wink
For me Robs illness brought me a family i barely knew,friendship that will stay forever,and the loss of my fear of flying ,for which i will be eternally grateful Without that i wouldnt be where i am now .
On the downside it has made me totally intolerant of whingers,wimps people who think they are better than me,bullies, bigots,and careless professionals.
So i guess that means there are many ways having cancer affects us ,but for the most part once the fear,anger and shock dissapate,some good must come out of it. Musnt it?


Last edited by Cookey; 01-07-2008 05:13 PM.

Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
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Dave, that was such a good line you had in your post, how you were still innocent at the age of 58. I believe that's how it is for all of us, until something like this happens, no matter our age. We spend our lives knowing that death is there, waiting for us, and that it will claim us one day. But we don't worry about it, we don't think of it a hundred times a day, it's something that is safely in the shadows of a long hallway in my opinion. We feel safe and innocent where death is concerned. Then we become a cancer patient, and it's like someone turned on a light in that dark hallway and the face of cancer, the realness of it, jumps out at us. Innocence is gone, safety net ripped to shreds.
So, for you to say you were innocent at the age of 58............every other 58 year old man that hasn't suffered your disease is STILL innocent!

Great responses, I can always count on this board to make me know that my feelings are valid and that I'm not a total nutcake.
Love,
Minnie


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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I agree with the stupidity, laziness and most of all the common snese that too many people were raised without. This stuff upsets me too just like it does talbill. Some are just dumber in the head than a mule is in the ass.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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A couple of thoughts on road rage:
1. I knew that I was getting well when I found myself getting angry at drivers again! That kind of loss of perspective only comes to those not consumed with thoughts of dying.

2. Although I am not particularly religious I heard a very good sermon at a local church during my recovery: The preacher told of how one evening he was going to have dinner at the home of a church member and carrying in his car a big tin dish of lasagna prepared by the church kitchen. He said that because he had to drive slowly and carefully to keep from spilling the lasagna, cars honked, sped around him and the drivers generally got angry and gave him hell. He said, that he could have used a sign in the window that said "Lasagna on Board".
The point, of course, was well taken. As we drive and run and walk through this world, we have no idea what the person next to us is going through at that moment...for all we know, they are on the way to their mother's funeral.

On the other hand, if I still have my edge, then at least I know that I am alive.

Danny G.


Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
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