| | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Your thoughts and prayers were felt yesterday. Knowing that no matter what RO said, that I had my family here at the OCF kept me grounded and strong. Thank you.
The appt was fantastic! He is thrilled with her progress, said her tongue, which looks like a volcano erupted, was in advanced healing stages, enough so that it wouldn't be out of the question to do a baseline MRI at this point. He did warn of false positives, but felt ok ordering test all the same.
He told her to go on her vacation, did I tell you that my dad booked a trip for them 4 months ago? They are going to Mexico with friends Feb 1st - 8th.
The visit was great. Need to stop listening to family and well meaning friends....told mom I was going back on patrol--no negative allowed in her vicinity.
Thank you all for your love and support.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 |  What wonderful news, Donna!! And a trip to Mexico for your Mom and Dad. I'm sure the trip will do them both worlds of good. Now it's time for you to do something fun for yourself!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Anne-Marie....(always think of "That Girl" when I type your name!) I feel so wonderful today Mom is more like herself, even while enduring her pain. For me, I am going to call Tony, my hairdresser-haven't had my hair done since last spring, I think. My treat to me!! Thank you again.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Go have a general check-up with your GP as well, then get some acrylic nails! And when your mom's in Mexico, you and Ed go out for a lovely meal together and get your breath back!
So glad your mom is also feeling better today
Love Brenda!
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | That's great news Donna! I am happy for both you and Rose. I remember the first time I got my hair done after taking care of Dan around the clock. I was a mess, not sure who looked worse, him or I. I made a day of it and went to Chicago with a girlfriend. We talked and and window shopped and got our haircuts. It was wonderful. And, it really boosted Dan's spirits to see me gain some independence back as he didn't like being the person in need all of the time. So, I hope you call Tony today and treat yourself to some pampering. I'm so happy your mom will be able to go to Mexico. I'm sure that will do much for her spirits as well.
Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Nov 2006 Posts: 93 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2006 Posts: 93 | Fantastic!
I am thrilled for your family.
Maggie
caregiver to husband
right tonsil stage 3
35 IMRT TX completed 1/5/2007
PET Scan clear 3/07
biopsy 9/07 clear
1st yr PET scan 12/18/07 clear
| | | | | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | YAHOOOOOOOO!!!! What Great News !! Yes get your Hair done, and like Bren said your NAILS too !! I love having my nails done !!
SO Happy your mom and dad are going on vacation ...I am jealous !! It is -5 here today , I could stand mexico right now !!! hahhaaha.
Enjoy yourself and do somthing for you ! You deserve it !
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | It's good to hear good news on here. I feel as if you all deserve a break and enjoy your time getting a little R&R. That sounds like a trip well planned.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Thanks All!!
Feel so much better already knowing my mom is doing so well.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | So glad your Mom is doing well! So - are you having fun yet?? 
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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