#66314 12-28-2007 04:29 PM | Joined: Dec 2006 Posts: 46 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Dec 2006 Posts: 46 | I was wondering if we could get a sort of sub topic involving TL and there special needs. There are many here and it is specific to Larys. I have quite a few Q + A I would like to share.
46 yr old-SCC TVC 9/06. Surgery - Radiation X30 - Last Tx Nov 29, 06 - never got voice back - Total Larygnectomy Jun 5,07/ X30 IMRT started Aug 9,07 - 2 Tx Cisplatin 21 days apart / Aug 15,07 to Sept 15,2007 I'm done with treatment!
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Tony, As far as I know, I think there are only 3 or 4 of us and Marlene doesn't sign on very much. If you have specific questions, why don't you start a string on after treatment issues and we can all post to it. There is also a web site for TLs, www.webwhisperers.something. If you can't find it, I will look it up. You may find more answers there. Most other people here with trachs only have them temporarily. You can also email me directly. I prefer you don't PM me because I can't always get on the forum. Take care, Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Tony
There is also a Yahoo Group called neckbreathers which I belonged to for a while I had a mongomery T-Tube, they are a good group like here.
Sunshine..love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
| | | | | Joined: Sep 2007 Posts: 24 Member | | Member
Joined: Sep 2007 Posts: 24 | hi tony,
i too would be interested in a lary group because my husband Del will be facing that surgery later this month. so, if there is a group started, i would participate as a caregiver.
take care,
emma
wife to Del,dx.4/07 BOT SCC t3n3m0 3rounds chemo (5fu,cisplat,taxotere,erbitux)35 IMRT tx.with weekly erbitux.finished 9/07. 12/07 biopsies +,surgery not an option.returned to palliative chemo 2/08. 6 tx.of cisplatin/taxotere,methotrexate 8 tx. He died Aug 20,2008, but lives always in my heart.
| | |
| Forums23 Topics18,286 Posts197,238 Members13,433 | | Most Online2,386
Nov 19th, 2025 | | |
This is another custom island. This one could be used for ads. This spot is one of the best places for ads on your site to be placed. This can be enabled/disabled on a per forum basis.
| | |
|
