#66314 12-28-2007 04:29 PM | Joined: Dec 2006 Posts: 46 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Dec 2006 Posts: 46 | I was wondering if we could get a sort of sub topic involving TL and there special needs. There are many here and it is specific to Larys. I have quite a few Q + A I would like to share.
46 yr old-SCC TVC 9/06. Surgery - Radiation X30 - Last Tx Nov 29, 06 - never got voice back - Total Larygnectomy Jun 5,07/ X30 IMRT started Aug 9,07 - 2 Tx Cisplatin 21 days apart / Aug 15,07 to Sept 15,2007 I'm done with treatment!
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Tony, As far as I know, I think there are only 3 or 4 of us and Marlene doesn't sign on very much. If you have specific questions, why don't you start a string on after treatment issues and we can all post to it. There is also a web site for TLs, www.webwhisperers.something. If you can't find it, I will look it up. You may find more answers there. Most other people here with trachs only have them temporarily. You can also email me directly. I prefer you don't PM me because I can't always get on the forum. Take care, Eileen
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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Tony
There is also a Yahoo Group called neckbreathers which I belonged to for a while I had a mongomery T-Tube, they are a good group like here.
Sunshine..love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
| | | | | Joined: Sep 2007 Posts: 24 Member | | Member
Joined: Sep 2007 Posts: 24 | hi tony,
i too would be interested in a lary group because my husband Del will be facing that surgery later this month. so, if there is a group started, i would participate as a caregiver.
take care,
emma
wife to Del,dx.4/07 BOT SCC t3n3m0 3rounds chemo (5fu,cisplat,taxotere,erbitux)35 IMRT tx.with weekly erbitux.finished 9/07. 12/07 biopsies +,surgery not an option.returned to palliative chemo 2/08. 6 tx.of cisplatin/taxotere,methotrexate 8 tx. He died Aug 20,2008, but lives always in my heart.
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