#66413 12-30-2007 10:00 AM | Joined: Nov 2007 Posts: 27 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Nov 2007 Posts: 27 | Hi all. I have been viewing this site for about a month and a half now. I have found such good information on here. This is a great support as there is not much out there for oral cancer in the community. I am a 40 year old non-smoker, non-drinker that was totally shocked to find out I had oral cancer just about 1 year ago. To say that my life has changed is a small understatement. Radiation was a tough road to travel and I am still feeling the affects. Hats off to all those involved with the creation and maintenance of this site.
SCC of tongue removed 3/07 mod. left neck dissection. Tumor reappeared 6/07. Removed 8/07, right neck dissection, free flap from wrist for tongue graph. Radiation 30 (IMRT), chemo cisplatin 4 rounds finished 11/07.
| | | | | Joined: Jun 2006 Posts: 22 Member | | Member
Joined: Jun 2006 Posts: 22 | Welcome Richmond girl!
I'm glad you found the site, but of course sorry you needed it.
I was diagnosed about this time 2 years ago (age 29, non smoker/occasional drinker).
I hope your troubles end with 2007 and that the start of 2008 brings better news for you!
Redser
SCC of the left lateral border of the tongue.Partial glossectomy multiple nodes removed 01/06, T2/N0/M0.1 week Brachytherapy 04/06.Modified Neck dissection 1 node 06/06,negative. New ulcer 11/06,non cancerous, HBO treatment 01/07 to 03/07. 2007-2008 had speech therapy and voice training.OK now!
| | | | | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 214 | Hi Richmond girl! Hope you are starting to feel better!
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
| | | | | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Welcome to a wonderful community of people who will support you if you feel low, answer your questions with knowledge and experience and just generally be there for you!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
| | | | | Joined: Dec 2007 Posts: 10 Member | | Member
Joined: Dec 2007 Posts: 10 | It saddnesses me to read that after a year your still feeling the affects of your treatment. I hope you are going on with life. I have only been diagnosed six months ago, and I thought I would at least be eating. How are your taste buds a year later? Can you eat some of your favorite foods?
cherish
Age 30 nonsmoker nondrinker HPV+tumor on tonsils stage2 1node peg chemo2 rad8wks TX over 10/29/07
| | | | | Joined: Dec 2007 Posts: 10 Member | | Member
Joined: Dec 2007 Posts: 10 | how are your taste buds after a year? I am sorry that your still feeling the affects of treatment after a year! I have only been diagnoised six months ago and I thought this all would be behind me. It is not I still have a feeding tube. I have no taste except for grits, eggs, and sauage pudding.
Age 30 nonsmoker nondrinker HPV+tumor on tonsils stage2 1node peg chemo2 rad8wks TX over 10/29/07
| | | | | Joined: Jun 2007 Posts: 221 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 221 | Hi Neighbor! And welcome to the board  Joy
CG to Father, 75 yo with SCC of the mouth; upper maxillectomy and neck diss. performed on 5/23/07. Father also suffered heart attack during surgery and now has CHF. RT complete on 8/28/07. Cancer back 11/27/07. RT and Chemo to start on 12/17. Cancer back 6/17/08. Finally at rest 08/08/08.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Richmond girl, I assume you got tested for HPV? I was born and rasied in Richmond and moved to Gulfport when I was 36.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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