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#66345 12-29-2007 08:29 AM
Joined: Oct 2007
Posts: 35
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: Oct 2007
Posts: 35
Hi,

Week 4 was actually better that week 3--here's a short and sweet synopsis:

--Short week (3) Tx due to Christmas.

--Got a fentanyl patch on Wednesday...this is an absolute godsend to address constant pain from the Grade 3 mucositis.

--Now have thrush--received a liquid antibiotic to address.

--It seems my taste is better than it was a few weeks ago, and my tongue is no longer gray colored. However, the taste buds are still way off.

--I am able to eat with the help of lidocane prior to the meal--usually soups with bread softened in the broth.

--Neck is starting to get red.

--Hair on the nape of my neck (right side) is gone. Looks goofy from the back like a very bad haircut.

--Doctor cut out my Monday treatment to give the mucositis time to clear--so another (4) days w/o tx.

--I bought some otc rinse called Prevention--it seems to work pretty good.

12 more treatments to go.

Best Regards,

Oscar



Joined: Aug 2003
Posts: 1,627
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Aug 2003
Posts: 1,627
Oscar,
It sounds like you are right on track and doing well. Try the Biotene products also, they worked great for me.
Minnie


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
minniea #66387 12-29-2007 05:33 PM
Joined: Sep 2007
Posts: 18
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Joined: Sep 2007
Posts: 18
Hi Oscar,

Well,12 down,18 to go here. It's getting a little difficult to swallow, but I'm managing so far. Still doing just liquids. I can taste only a few things slightly, very frustrating to watch the rest of the family eat, especially this time of year. The thrush I had last week is now gone, but I have an ulcer on the left side of my tongue which is troubling me. First because it's painful and second because this is how my symptoms began before I was diagnosed. I'm going to have the Dr. look at it Monday. I want him to look at it and tell me it's just from the radiation and not something my imagination is dreaming up. So far, the pain is manageable with percocet. My neck is starting to get red too. Putting on lots of aquaphor. The percocet makes me pretty tired, but nothing else to report.


Jenna,46,non-smoker,non-drinker
diagnosed SCC tongue 9/18/07
patial glossectomy 10/22/07
IMRT ends 1/24/08
PET scan 4/16/08-all clear!

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