#66204 12-12-2007 02:02 PM | Joined: Dec 2007 Posts: 2 Member | OP  Member
Joined: Dec 2007 Posts: 2 | Dec 2006, I was diagnosed w/T1N2aM0 SCC primary right tonsil. Rad/chemo, partial neck dissction. PET/Ct clear two weeks ago. I've had a sore in my mouth for months thougt to be post rad induced. Prelim. biopsy report came back with inflammation. I am waiting (Monday) for a more complete report. Can anyone offer some insight?
LLR
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#66205 12-12-2007 06:24 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | LLR: Wish I had some medical explanation for you; Just know that we're thinking about you, and sending positive thoughts your way.
Monday will be here before you know it!
Lois & Buzz in NC
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#66206 12-13-2007 05:46 AM | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Keep going back and going back. I had a biopsy done in clinic in late June that showed "irritation" but more extensive biopsy done under anesthetic mid Sept showed the cancer. I am praying that your situation will be different, but if I had just said to myself "oh well...must be something else..." and not pursued it, my situation would be alot worse than it is today.
Good luck
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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#66207 12-13-2007 12:43 PM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Donna's advice is right on. See what they say but if it doesn't heal keep getting it checked and go to other docs. I went to 5 CANCER docs before I was finally Dxed correctly. Who knows how I would have ended up if I had stopped after my 1st consult? Well I suspect I wouldn't be writing this now as initially I was put on antibiotics for cat scratch fever!!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#66208 12-13-2007 05:50 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LRR, I agree with these people and go for it. These are the people along with Barb that made me see the light and get another opinion. Good luck and I'll be praying for you. jim
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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