#66076 09-28-2007 08:41 AM | Joined: Jul 2006 Posts: 18 Member | OP  Member
Joined: Jul 2006 Posts: 18 | Hi everyone. Just wanted to share some good news. We got Joe's PET/CT scan results yesterday: the lesion in his lung went from 12mm to 7 and there is no PET activity at the previous tumor sites or at any new sites. The report did note some uptake in his brain (and the CT part was inconclusive due to artifact from his fillings), but his MO said that not unusual for PET, and PET is typically not used to dx anything in the brain. At any rate, the MO felt good enough about it to take him off of chemo and continue with weekly Erbitux. Joe also has 3 daily follow up injections of Leukine (which he gives to himself) for synergy with the Erbitux. We'll do this for another 12 weeks, then scan and see how it's going. His MO said if he continues to have good scans he can stay off chemo for what he hopes to be indefinitely. I can't begin to tell you how much of a difference it makes to have a doctor who is hopeful and positive. How can you begin to heal when you are treated by someone who doesn't believe it's possible? Joe's MO and ND also made some adjustments to his naturopathic prescription to aid in tissue healing and immune function. He continues to feel really good, keeping up with exercise, working part-time, etc. He is already making plans for hunting season, which starts next month--somethings never change!  We feel incredibly blessed. We look forward to further healing and health, and we wish the same for you all. Take care! Chris
Wife & CG to Joe.
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#66077 09-28-2007 08:49 AM | Joined: Oct 2006 Posts: 46 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Oct 2006 Posts: 46 | That's wonderful news, Chris!!  Thanks for sharing. Your message is especially important for those folks who have received "less-than-hopeful" prognoses from their docs. Continued good health and happiness to both you and Joe. Tricia
CG to spouse, tonsillar SCC, T2N0M0, tonsillectomy 9/06, 35 rad tx finished 12/06, no chemo. Positive PET 3/07 in tonsillar fossa (residual tumor), surgery 4/2/07 composite resection tonsillar fossa and BOT w/forearm graft and right ND.
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#66078 09-28-2007 08:57 AM | Joined: Sep 2007 Posts: 61 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2007 Posts: 61 | Chris,
So glad to hear your good news. As my dear friend just starts her treatment it is great to read of positive outcomes! I love to read about those people that continue to be active, as my friend is someone who NEVER sits down, at 54 she puts me, her 44 yr old friend, to shame!!
I wish Joe all the best!
Liz
CG to friend Mary. SCC Stage IV-A of rt. tonsil, mets. to lymph node on rt. DX 06/07,tonsillectomy 08/07, Chemo Cisplatin, Taxotere and 5FU X3 cycles; RAD completed 1/20/08 RND scheduled for 3/08. 54yr.old, NS, social drinker.
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#66079 10-02-2007 05:40 AM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Chris, Great news!! Tell Joe good luck on the hunting. I sure miss the taste of good venison. All is fine in my neck of the woods. (so far?) Take care, Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
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#66080 10-02-2007 05:49 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | That is such good news Chris
Was just talking to my friend today--both her daughters have had breast cancer at very young ages--one was declared terminal and given 2 years max to live---15 years ago--she's now a happy healthy career woman!!
Positive is not just good, it's excellent!!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#66081 10-03-2007 07:43 AM | Joined: Jan 2007 Posts: 97 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2007 Posts: 97 | Hi Chris-
That is great news!
Melissa
Age 36. Four years of fighting Stage 4 Skull Base Cancer
Can't even fit it in the signature line. I've tried it all! 5 surgeries, IMRT, cyberknife, cisplatin, erbitux, AIM, taxotere, carboplatin.
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