Previous Thread
Next Thread
Print Thread
Page 2 of 2 1 2
#6490 11-12-2005 01:40 AM
Joined: Jul 2005
Posts: 150
Gold Member (100+ posts)
OP Offline
Gold Member (100+ posts)

Joined: Jul 2005
Posts: 150
So encouraging, thanks guys. ENT came by and said there's nothing else they need to do. (With the exception of follow ups). I keep thinking of all you and the inspiration you provide my father and I.
We're just hanging in the hospital. I call my dad "tube neck" because when he walks the tubes thwap on his neck. My uncle calls him the predator. The neck and submandibular regions are puffing.
Now, for the emotional side. Before his surgery he convinced himself and me that he may have more lumps in his neck.
One day and ray of sun at a time.


Dad Treated for T2N1M0 Tonsil Cancer August 2005. 35 IMRT radiation, 3 doses Cisplatin. Selective Modified Neck Dissection November.
#6491 11-12-2005 02:04 AM
Joined: Apr 2003
Posts: 122
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Apr 2003
Posts: 122
Congratulations, Shawna and Dad! .....mostly for keeping each other's attitudes and perspective on the positive side through the dark/scary uncertainties. It makes ALL the difference. I loved the post about the "frankenscar" as a badge of courage- gives me some more material to "play" with in my own recovery. Hope all continues well into the future.
Gordon


SCC right tonsil Dx 14 Feb 03
No surg till Apr 03
Lip resection Sep 05 "frankenface"
Recurr Apr 10
2/3 tongue removed Jun 10
SPEECH/SWALLOW/DROOL challenges FUN!
Dec 10 Tumor @ nodes/larynx/cart artery growing
Erbitux Mar 11 Hyoid bone regrows!?
recur Dec 12
begin taxo chemo
10yrs-still kickin!

#6492 11-12-2005 05:49 AM
Joined: Jul 2005
Posts: 150
Gold Member (100+ posts)
OP Offline
Gold Member (100+ posts)

Joined: Jul 2005
Posts: 150
Yes, keep plugging Gordon. They can do amazing things these days. If you master the art of living one day at a time, give us some of what you're taking--

I just picked him up from the hospital, he's on his way home. We are going to thoroughly enjoy this high right now and always pray for us and everyone.

He just asked me: "Do you think I'm going to freak people out when I go and pick up a gallon of milk?" I told him that most people are either in the medical field or know someone who has had surgery. Most people think: "What a courageous Lion---" Or-"I wonder if OJ simpson was visiting him and lost?"


Dad Treated for T2N1M0 Tonsil Cancer August 2005. 35 IMRT radiation, 3 doses Cisplatin. Selective Modified Neck Dissection November.
#6493 11-12-2005 08:35 AM
Joined: Jan 2005
Posts: 156
Gold Member (100+ posts)
Offline
Gold Member (100+ posts)

Joined: Jan 2005
Posts: 156
hi shawna, great news about your dad.thats what we all like to hear my best wishes for the future. .........god bless you both ...maz

#6494 11-12-2005 11:12 AM
Joined: Apr 2005
Posts: 68
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Apr 2005
Posts: 68
Great news Shawna!!


Mucoepidermoid carcinoma-intermediate grade. Removed 3/05. Additional surgery to get clean margins and selective neck dissection 4/05. 30 lymph nodes removed. All clear!!
#6495 11-12-2005 11:17 AM
Joined: Feb 2005
Posts: 2,019
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Feb 2005
Posts: 2,019
Hi Shawna,

I'm so glad your Dad's surgery went well. I got my frankenneck operation right at the beginning-before the rad and chemo and before I even knew I needed rad and chemo and I remember how horrible I thought it looked (I didn't realize that the "neck staples" would really look like staples until I looked in the mirror in the hospital room). With my hair standing up on end and being kind of pale (it was February) I really looked like the bride of frankenstein for a few days but it healed VERY quickly. And the good thing for your Dad is this is the last thing he'll need to heal from--hopefully for a very long while.

Nelie


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
#6496 11-13-2005 10:54 AM
Joined: May 2002
Posts: 2,152
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: May 2002
Posts: 2,152
Hi Shawna and Dad,
Glad the surgery went well and he is now back home on the road to recovery.

Get that Biafine radiation cream back out(ask doctor first). It is a deep wound healing lotion and does great work on that frankenscar. I used it on both my neck dissections aand barely have a scar(course, I had a great surgeon also). Get the PT or doctor to show him how to massage the scar so it doesn't tighten up. Don't remember how many weeks later you are allowed to do this. Depending on what they had to cut, he may have muscle weakness in the shoulder and need PT. Check with doctor on this also. I was told not to lift anything greater than a lb for several weeks. I found propping something under my arm to reduce drag on the shoulder helped until it had enough strength on it's own.

Onward and upward to a speedy recovery from surgery.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
#6497 11-13-2005 11:07 PM
Joined: Apr 2004
Posts: 146
Gold Member (100+ posts)
Offline
Gold Member (100+ posts)

Joined: Apr 2004
Posts: 146
Shawna and Dad,

So glad to hear everything went so well and you both seem to be in such great spirits with positive attitudes. This will help you both as you push forward. This will truly be a Thanksgiving to remember. Shawna, tell your dad to have some extra turkey and pie on the house! Hoping your recovery continues on the smooth part of the highway!

Hugs, Nancy


Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
#6498 11-14-2005 04:05 PM
Joined: Jul 2005
Posts: 150
Gold Member (100+ posts)
OP Offline
Gold Member (100+ posts)

Joined: Jul 2005
Posts: 150
I am so happy and honored to hear from so many of you! My father and I are trying to live in the moment. It is funny what a roller coaster this is. You know, we just had the good news and he's recovering nicely. But now, we are both stirring until the appointment this Friday. This is when they tell us how many nodes they were able to extract and whether anything is lingering. Oh, and there is the CT scan in December that is going to look at the 3 mm node in his left lung...it's hard, it's just really hard. Not to say we are not positive, it's just the realization that we are succeptible to anything. One day at a time...one day at a time. Dad is tired after surgery and says his shoulder is very weak--they must have stretched his spinal accessory nerve pretty good.
I adore you guys-thank you.


Dad Treated for T2N1M0 Tonsil Cancer August 2005. 35 IMRT radiation, 3 doses Cisplatin. Selective Modified Neck Dissection November.
#6499 11-15-2005 02:38 AM
Joined: Jul 2005
Posts: 28
dee Offline
Contributing Member (25+ posts)
Offline
Contributing Member (25+ posts)

Joined: Jul 2005
Posts: 28
Dear Shawna and Dad,

I am SO HAPPY to hear the good news about your Dad!
Hopefully your rollercoaster ride can slow down now. Best wishes to the both of you and your family...You both have the greatest gift of all: EACH OTHER!
Take Care,
dee


Caretaker of Mom with Unresectable stage IV SCCHN, T1-3,T4..No,N1,N2-3. IMRT daily treatment starting 8/24/05. Erbitux every week starting 8/10/05 and Cisplantin every 3 weeks times 3. Diagnoised 7/5/05 -passed and in peace now on 10/1/05
Page 2 of 2 1 2

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,778
Newest Members
TBurr, JosieK, Trudy, Jbs, Rarexs
12,799 Registered Users
Forum Statistics
Forums23
Topics18,000
Posts196,091
Members12,799
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2021 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5