#6338 10-18-2005 03:11 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | OP  "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Hi folks
Yesterday I received my two and a half year all clear from my h+n guru. Even though I still get a sore throat often, my throat and everything else are OK. He put the sore throat down to dryness.
He also mentioned that my chances of a recurrence are now reduced and for the first time really, I feel that I DO have a future. Oops, I'd better stop spending my life savings every time I feel like it!
I hope members in treatment take heart from this. It is worth persisting with the treatment even though it seems to be such a high mountain when you're there. I wondered whether it would be beneficial when I was in treatment - I'm glad I pushed myself now.
Thankyou to this site and its members for your knowledge, humour and insight. Especially to Tizz whom I met through this site, for her constant support.
Love and light from Helen
RHTonsil SCC Stage IV tx completed May 03
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#6339 10-18-2005 03:40 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | I'm so happy for you Helen. You made me feel better many, many times when I first stumbled onto this site and I'm sure you will continue to make me feel better for many, many, many, many, many more years!!
Much Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#6340 10-18-2005 05:13 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | I cried tears of joy in reading the tone & message of your posting Helen!! You have been a valuable member who has offered support, advice and love to many. May you live a long and healthy life.
Love Ya, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#6341 10-18-2005 06:24 PM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Aw shucks Helen :rolleyes: ...I'm just waiting for the day when I can say that - I'm still on 3 monthlies. And also thanks for your help and support for me, besides to everyone else. Congratulations!  Cheers! Tizz 
End of Radiation - the "Ides of March" 2004 :-)
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#6342 10-18-2005 08:14 PM | Joined: Sep 2005 Posts: 325 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2005 Posts: 325 | It's a beautiful thing to read your post. Many happy returns of the day!!!!!
Andrea
SCC L lat tongue,Dx 9/15/05 T1N0MX L MND and L lateral hemiglossectomy 10/03/05. Recurrence 11/15/06 2nd surgery 12/04/06 hemiglossectomy 3rd surgery 01/15/07 tonsillectomy Radiation 01/25/07 to 03/08/07 3-D/CRT X 30
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#6343 10-19-2005 12:55 AM | Joined: Aug 2004 Posts: 100 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Aug 2004 Posts: 100 | Helen,
Cheers to you! What wonderful news~Maureen
maureen (friend to Rod SCC tonsil diag. Mar 04 stage 4 -concurrent rad. & chemo) Finished tx July 04
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#6344 10-19-2005 06:05 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Helen,
That is great news. Congratulations. Next thing you know you will posting your 5 year all clear check up. Star saving after you go celebrate.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#6345 10-19-2005 06:23 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Helen, awesome news! I am very happy to hear it. Wonderful.....p.s. I have sore throats a lot too, I am very, very dry especially in the morning...You are in my thoughts Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#6346 10-19-2005 07:35 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Helen,
What great news! Thank you for sharing that and especially thank you for all you do for all of us!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#6347 10-19-2005 08:05 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Great News from the Land of Oz!!
Congratulations Helen, we are very happy for you.
Take care
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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