#61876 10-01-2007 08:19 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Went to surgeons office, tube removed!!!! I am so relieved. I think mom is even more so as I have pretty much pulled the tubing each time I was trying to take care of her. Mom is hungry, going to try to find her something to eat 
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#61877 10-02-2007 08:12 AM | Joined: Jun 2007 Posts: 26 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jun 2007 Posts: 26 | Donna,
That is amazing news. I am so happy for your mom, and you too. I am looking forward to the day that we don't have to feed my mom through a tube. I feel awful... I work at a culinary school and all I can feed my mom is Jevity and Carnation VHC!
Amy
Caretaker to my best friend, my mom. Age 60 - never smoked or drank. St IVA oropharynx. 37 radiation tx, 8 carboplatin tx. Diag 5/31/07-TX completed 8/16/07-good PET 10/10/07. Passed away 3/28/08 due to weakened blood vessels from tx. Now watching over her triplet grandsons born on 5/19/08.
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#61878 10-02-2007 08:23 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Great news Donna hope the feeding goes well
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#61879 10-02-2007 09:42 AM | Joined: Aug 2007 Posts: 51 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2007 Posts: 51 | Are there any LONG term tube users out there I mean for years that can give me any advidce on maintaince. It appears my tube is going to be forever and I am only 58 at this time. My swallow function seems to be frozed from treatment. Only water will go down if I hold my breath and swallow hard.
Jim W. DX and treated May 1997 stage 4 tonsil cancer 40 radiation 2X daily at the same time 8 weeks IV chemo cocktail 5 types on 5 days off 2 days refuesed neck resection. 10 years clear now swallow function ceased May 07 after pneumonia.
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#61880 10-02-2007 12:15 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Hi Jim,
I don't have an answer for you, I don't know much-who am I kidding?-I don't know anything really about tubes.
Maybe you should re-post this under a new topic, subject -- long term tube users?
May I ask, what kind of treatment did you receive?
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#61881 10-02-2007 01:47 PM | Joined: Aug 2007 Posts: 51 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2007 Posts: 51 |
Jim W. DX and treated May 1997 stage 4 tonsil cancer 40 radiation 2X daily at the same time 8 weeks IV chemo cocktail 5 types on 5 days off 2 days refuesed neck resection. 10 years clear now swallow function ceased May 07 after pneumonia.
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