#61827 09-21-2007 08:00 AM | Joined: Jan 2007 Posts: 12 Member | OP  Member
Joined: Jan 2007 Posts: 12 | 11 Months since initial surgery. Numbness seems to be clearing up. Some discomfert which I mentioned to ENT guy during regular visit. He orderd PET Scan. Apparently he has seen some cloudy spots in lymph area and bottom of mouth. Now starts a series of biopsy's etc. Needless to say very concerned. Anybody had any similar after treatment experiences
65yo DX 10/14/06 SCC tongue StgII. 11/21/06 Partial Glossectomy & radical Neck dissection. TX continues 10/07 recurrence 3 mos rad supplemented by 3 Chemo sessions
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#61828 09-23-2007 03:43 PM | Joined: May 2007 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2007 Posts: 104 | Sorry to hear of your worries. It is sooo scary.
Hope biopsy is clean.
Jordan's Mom. Linda
She fought the fight with courage, hope and dedication. Ten months of battling tongue cancer. They thought they had it after each treatment. Not to be. Christa died at 32 y/o in Nov. '07.
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#61829 09-23-2007 11:52 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Sailor,
The PET scan is a great test to use for our type of cancer, but it can cause us alot of needless worry. I just went through this myself. My PET scan showed a spot on my lung, which scared me to death. It turned out to be scar tissue. See what your ENT has to say and what he does and keep us posted.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#61830 09-24-2007 03:03 AM | Joined: Dec 2005 Posts: 31 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Dec 2005 Posts: 31 | My husband Leon just went through this last month. He had a PET Scan and it came back with high activity at base of tongue and surgical bed. He had a biopsy done the beginning of August and it came back all clear. They are chalking up the high activity on the PET to scar tissue.
Rhonda - Caregiver to husband Leon. Diagnosed with SCC of right tonsil, 1 lymph node. Right tonsilectomy 10/3/05 - Right neck dissectomy 10/12/05, completed 39 IMRT treatments 2/23/06.
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#61831 09-24-2007 06:54 AM | Joined: Dec 2005 Posts: 3 Member | | Member
Joined: Dec 2005 Posts: 3 | One of my scans came back all lit up because I had the flu the prior week. I even mentioned this to the technicians and asked if I should reschedule. ...Spots on lungs...active lymph nodes... The doctors called my wife and left messages like 'We got the test back and call back immediately etc...'. Freaked out the wife. They just tested me 30 days later and it came back all clear. Bottom Line - pet scans don't detect cancer - biopsies do. | | |
#61832 09-29-2007 02:38 AM | Joined: Jan 2007 Posts: 12 Member | | OP Member
Joined: Jan 2007 Posts: 12 | Seems the Scan was accurate and "it" has returned under tongue in back on floor of the mouth. Although the Nodes again seem clean Now in planning stages of Rad & Chemo (some 8weeks etc). This stuff never seems to let go. O well could have been worse for sure.
65yo DX 10/14/06 SCC tongue StgII. 11/21/06 Partial Glossectomy & radical Neck dissection. TX continues 10/07 recurrence 3 mos rad supplemented by 3 Chemo sessions
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#61833 09-29-2007 02:45 AM | Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) | | "OCF Canuck" Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 446 | Sailor, sorry to hear you have to go round 2 with the beast. Hang in there, you'll make out fine. We're all behind you in the battle
Wayne
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
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#61834 09-29-2007 12:12 PM | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2007 Posts: 580 | Sailor,
My thoughts and prayers are with you. I'm sorry to hear your news. Keep your head up my friend we're all here for you.
If you need anything e-mail me.
Cheers,
Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
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