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#61606 08-26-2007 05:21 PM
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RileyMc Offline OP
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This has been a struggle for the past 5 months. My TSH indicated hypothyroidism (5.84) in April. I was prescribed .15 mcg synthroid until June, when the TSH came back at .12. The synthroid was dropped to .10 mcg and the last TSH read .84

Today, I spoke with a guy who takes synthroid and Armour, which includes T3. Thyroid function is a very complicated process, and my RO doesn't even deal with it; he leaves it to his NP, who doesn't seem to know much beyond TSH results.

Is it possible to have within normal TSH readings yet not have enough T4 or T3? And should another medication like Armour (or the synthetic) be considered? And what tests in addition to the TSH are necessary to determine what the course of treatment should be?


dx 2/13/06. modified radical neck dissection 3/9/06 multiple biopsies of upper airway and direct laryngoscopy. 1 of 47 lymph nodes positive for metastatic undifferentiated carcinoma (lymphoepithelioma). Unknown primary. Finished radiation 5/24/06.
#61607 08-27-2007 11:32 AM
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ccw Offline
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I suggest you see an endochronogist. My wife had her thyroid "killed" about 24 years ago, and has been on synthroid ever since. She still goes to the doctor once a year to make small adjustments.

I am currently seeing an endochronolist because my TSH has been somewhat like a yo-yo these last several months.

Best wishes,

Chris


SCC left tonsil, 2 lymph nodes, modified radical neck dissection, IMRT (both sides) completed 10/25/06, Erbitux and Cisplatin weekly, Ethyol daily
#61608 08-28-2007 12:37 AM
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If your TSH keeps bouncing around you should definitely see an endocrinologist. I haven't done this yet, but my thyroid meds have been adjusted twice since I went on them 10 months ago, and if the TSH is still off on the next test, I'm going to!

Nelie


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
#61609 08-28-2007 04:03 AM
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"Above & Beyond" Member (500+ posts)
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Hi Riley

My Mom struggled with bouncing TSH levels for the 50+ years after her thyroid cancer removal surgery. It can be controlled, you just need to get with your doc and probably an endo.

Kevin


18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
#61610 08-28-2007 10:53 AM
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RileyMc Offline OP
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I saw my ENT yesterday for the regular optical tube through the nose checkup and asked. She said testing T3 and T4 is just a waste of money. Thyroid med dosages are governed solely by the TSH levels.

So now I know.


dx 2/13/06. modified radical neck dissection 3/9/06 multiple biopsies of upper airway and direct laryngoscopy. 1 of 47 lymph nodes positive for metastatic undifferentiated carcinoma (lymphoepithelioma). Unknown primary. Finished radiation 5/24/06.
#61611 08-28-2007 03:19 PM
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Your signature does not indicate you had radiation. Do you have a TSH from before you had cancer treatment? Normal TSH levels are between .40 and 5.40 according to my lab tests. I'm not even certain that having a 5.84 should have put you on meds since these TSH tests vary drastically. Iget one every three months. Do you have any symptoms of low or over active thyroid? A site that I used years ago is www.endocrineweb.com. It was very informative. You should try to keep TSH at the same level as it was before treatment assuming it was not outline before. .12 and .84 sound very low to me, ('I'm not a doctor), my normal is 2.8. Maybe you don't need the meds at all.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
#61612 08-28-2007 04:06 PM
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RileyMc Offline OP
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[quote]Your signature does not indicate you had radiation.[/quote]Read it again. "Finished radiation 5/24/06". A high TSH indicates hypothyroidism. Your 2.8 is well within normal range.


dx 2/13/06. modified radical neck dissection 3/9/06 multiple biopsies of upper airway and direct laryngoscopy. 1 of 47 lymph nodes positive for metastatic undifferentiated carcinoma (lymphoepithelioma). Unknown primary. Finished radiation 5/24/06.
#61613 08-29-2007 07:19 AM
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Posts: 2,152
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Sorry. Must have stopped reading before I got to the radiation part.

My 2.8 is while I am on synthroid 100. I was put on synthroid when I had a TSH reading of 32. Even on the meds I can bounce between 1.8 and 5.8, although it normally stays in the 2.8 range. If I go too low, I drop down to synthroid .88 or alternate between the .88 and 100.

My main point was, they should have done thyroid test BEFORE you had radiation so you should know what your TSH level should be. Your meds should try to keep you at that level, but most drs just care if you are within range.

Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
#61614 08-29-2007 01:35 PM
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Posts: 137
RileyMc Offline OP
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Eileen,
I think the TSH readings are inverse, ie, if you have a low reading, (under about .32) you're getting
TOO MUCH synthroid. A high reading, (over 5.00 or so) indicates hypothyroidism and you need more synthroid.


dx 2/13/06. modified radical neck dissection 3/9/06 multiple biopsies of upper airway and direct laryngoscopy. 1 of 47 lymph nodes positive for metastatic undifferentiated carcinoma (lymphoepithelioma). Unknown primary. Finished radiation 5/24/06.
#61615 08-30-2007 02:16 PM
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Posts: 2,152
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NO, my TSH readings are not inverse. Try reading that 32 again. There is NO decimal point in it. That is a high reading. Being slightly over the 5.5 is not really a reason to go on meds unless the problem persists. If you are trying to gain weight, you don't want to be in the low range.

Do you know what your normal was BEFORE radiation. You are on such a low dose I doubt you even need it. Get tested every three months for a while and see what the results are.

Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I

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