#61454 08-10-2007 03:07 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) |  "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Thats my boy 
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#61455 08-10-2007 01:48 PM | Joined: Nov 2006 Posts: 167 Likes: 1 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2006 Posts: 167 Likes: 1 | Allen, if you are that ready for a sandwich go try a french dip sandwich. Dip it in the au jus(?) and have at it. Never did like spelling. When you dip it, it will soften the bread plus carry juice so you can swallow it. That was my first thing I had when I felt ready. Good luck. Bill
Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07  | | |
#61456 08-10-2007 02:50 PM | Joined: May 2006 Posts: 137 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2006 Posts: 137 | Allan,
Welcome! Paragraphs are your friend. They make your thoughts easier to understand.
What you are describing is the 'new normal'. We all discover it. Things are not like they were, and they never will be. However, things will get better, more tolerable, more acceptable. You will heal, you may get some saliva function back, you will probably have to carry a bottle of water with you wherever you go.
It's ok. It's great to be alive. Remember, not too long ago, this cancer was a death sentence.
dx 2/13/06. modified radical neck dissection 3/9/06 multiple biopsies of upper airway and direct laryngoscopy. 1 of 47 lymph nodes positive for metastatic undifferentiated carcinoma (lymphoepithelioma). Unknown primary. Finished radiation 5/24/06.
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#61457 08-10-2007 03:09 PM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2006 Posts: 378 | Hey Allen, great news on the visit, and 6 months sounds about right. Keep your water handy and remember to try small bites first. Jack said that his jaw muscles got tired very easily in the beginning so don't worry if that happens. It's like any other muscle you need to build back up. You may only be able to eat a little bit at first. The dip - and sauce in general - does help. The biotene mouth gel right before eating might help. There's also a tea called throat coat that isn't bad, and prescription medications to stimulate saliva. But mostly it just takes time to see what comes back. Be patient, it's pretty early in your recovery. Good luck.
Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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