#61068 06-07-2007 02:38 PM | Joined: Feb 2007 Posts: 10 Member | OP Member Joined: Feb 2007 Posts: 10 | I sure could use some help from all you folks! My husband is 9 wks post tx. He still is eating via the peg. Has been trying to eat but with little success. Over the past week or so he has developed stomach unrest. He says he feels bloated, full, sour, gassy. Nothing we have tried is helping.He has had his peg since FeB with no problems til now. Help! | | |
#61069 06-08-2007 02:30 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Mar 2007 Posts: 525 | Hello Bette At the top centers of this page click on the "faq" (frequently asked questions). The 11th question is can I use a signature. You need to type his DX & TX (diagnosis & treatment) in the box to the right side where it days signature. Look at the bottom of my post where it says PeteyB. Including the PeteyB and the information "About My DX & TX" appears in every post I write. Any one who gets a post from me can see what type of cancer I had and what treatments I am in/or have undergone. You can change (add/delete) your signature any time you like. You are asking a question and we do not know anything about your husband except that he finished treatment 9 weeks ago and has a peg tube and is not eating. The signature helps responders by letting them know "your situation" and it helps you by "not having to type" this information every time you post a topic or respond to one. Also there are two search engines on this forum. One is at the top center of the page next to the faq, and one is at the bottom right of the page. Just click "search" and when the screen pops up type in your "key words" and click enter. Everyone here wants to help. But you need to let us know some information. Read my signature and you will know so much about me and I did not say/type a word. Make believe you are responding to your own post. As soon as you read it you know you can not answer because you need more information. We are looking forward to helping you. Sincerely, Petey If you have problems with the signature post back your question. Also, you can type the DX & TX here and post it and we can respond to this problem now and you can put the info in your signature later. Also, you should post in the "Symptoms and Diagnosis" or "Currently in Treatment". Unless his PEG is permanent, and he is no longer under a doctors care, this forum "After Treatment Issues" is not where you should be posting. I am just trying to help you here. This is not a scolding. >>>>>>>>>>>READ BELOW / THIS IS MY SIGNATURE<<<<<<<<<<<<
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method. ***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#61070 06-08-2007 03:31 AM | Joined: Feb 2007 Posts: 168 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Feb 2007 Posts: 168 | At about week 5 I went through another round of nausea. I did not have a peg. The only anti nausea med that worked for me during treatment was zofran and it did not help with that last round of nausea. I had to live through that one. I lost a little weight to because I couldn't eat. I'm 11 wks post tx and I am only having slight success with eating. Maybe a baby seving of solid foods a day. My taste is getting better but still no saliva. Good luck with this. I would definitely contact my docs about the stomach symptoms.
Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed. Good Health and Good Help to you. Lee
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#61071 06-08-2007 03:45 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Mar 2007 Posts: 525 | Bette
I just E-mailed you three threads to read.
Also, I just remembered something I read here. I do not think it applies to you but it may.
Someone said that the PEG should be changed every 6 months or so. They mentioned something about an infection in the stomach, or where it was inserted, I can't remember.
Follow Lee's advice and ask the doctor.
I hope this helped. Good Luck!
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method. ***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#61072 06-08-2007 04:25 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Petey's comment is interesting- John had both pegs for longer than 6 months and no mention of changing then. Amy in the Oz
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#61073 06-08-2007 07:10 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | I'd be looking at the tried and true. 1. Constipation from the pain meds and 2. A strong anti-acid since chemo does a number on the stomach lining. 3. PEG feeding itself is best done slowly over a long period of time. The most PEG success stories here involve gravity feeding bags with a controlled rate.
Petey's comment about changing the PEG every 6 months is the first time I have heard that here in over 4 1/2 years. I have heard of infections on the skin (do not use hydrogen peroxide on it by the way). I cannot recall hearing of stomach infections per se.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#61074 06-09-2007 02:44 AM | Joined: Apr 2007 Posts: 131 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Apr 2007 Posts: 131 | My husband has a gravity bag. My understanding of a feed tube is. The person should be sitting in an upright position 30% degree angle, 45% is better when receiving feed by feed tube. Never lie flat when receiving feed because it may come up. SLOW DRIPS are important. We find when a person has a feed tube we have their head at an angle to prevent any type of spitting up while they are sleeping. This practise is used while the person is NOT taking feed. I have a resident who as far as I can remember has NEVER had a change in their feed tube. The feed tube requires an opertion and can be dangerous to boot especially with a person who has tumours in their throat (bleeding can occur) eg. my husband is a good example. I am not a doctor and this is my point of view. Hope it helps. Check with your doctor. Carol Ann.
Carol CG to Husband age 60 Stage IV SCC right tonsil T4AN2B tx rad x 35 chemo x 2 Currently after treatment no sign of cancer in throat. (all clear to date)
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#61075 06-09-2007 09:03 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Funny how every doctor and nutritionist has a different view of what is the best way to administer feeds.I gave Robin his feeds with a syringe and bloating was a continuos issue, and the reason he couldnt take more than 400mls at a time.Sometimes it was because i did it too quickly,and sometimes i think it was because the feed was just disgusting and smelt bad,and was very rich.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#61076 06-09-2007 05:14 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Carol Ann is dead on about sitting while while feeding.
Cookey I have never heard of an American doctor or nutritionist ever suggesting to rapidly feed someone with a PEG.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#61077 06-10-2007 07:41 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | To add another experience to all of this, I never did a gravity bag, always used a syringe. I put the end of the syringe in and filled it up, held it until it all went in. If I was in a hurry, I held the syringe as high as it would go so it went in faster. I could "feed" myself in under 15 minutes if needed and I did it in the car, at work, shoot, everywhere I needed to do it. I traveled with my cheer teams with the tube. I didn't have issues generally but WOULD feel bloated if I fed to fast. Also, never had it changed and never was told that it needed to be changed. Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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