#61058 06-06-2007 09:20 AM | Joined: Apr 2007 Posts: 4 Member | OP Member Joined: Apr 2007 Posts: 4 | If you have had similar treatments my BIL Andy would like to ask you a few questions.
Did you get any taste back after recovery?
How long after treatment did you begin to taste things again?
I know that it different with everyone, but my BIL would just like to know what happened with your recovery/taste.
Thanks for any answers.
~Sheila - Sister to Caregiver Sheri and Sister-In-Law to Andy | | |
#61059 06-06-2007 01:13 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Mar 2007 Posts: 525 | Sheila, this will help with terminology. There are 2 search engines on the OCF site. One at the top and one at the bottom of each page. Surf the site. It will help you learn all its functions and resources
I
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method. ***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
| | |
#61060 06-06-2007 01:32 PM | Joined: Apr 2007 Posts: 4 Member | OP Member Joined: Apr 2007 Posts: 4 | Ok PeteyB, thanks for the links. I'm usually pretty forum savvy and have even helped moderate a few, but these have a whole different feel and look than what I'm used to.
I'm really lost on the abbreviations here. I will check those out and then make a siggy from that point.
Thanks again,
Sheila | | |
#61061 06-06-2007 01:59 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Mar 2007 Posts: 525 | Hey Sheila
With your experiance, read in the "General Board" forum the topic "How to get the most out of this forum". And then click the "faq" at the top center of any page and read it. Then you pretty much will have it all "down pat".
Good Luck
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method. ***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
| | |
#61062 06-07-2007 02:24 AM | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 622 Likes: 1 | Hi Sheila
I started getting taste back about 4 weeks post IMRT. It was still really *weird* what I could taste and what was cardboard. Sweets came back first and slowly everything else. I still have some problems, anything with citrus is sour or at best tart and not sweet, and anything cold (ice cream and such) kills my taste for a couple of hours. I didn't have much of a sweet tooth before, but now I have got to have something sweet after meals. Soft chocolate chip cookies are the best!
Spicy hot is complete out. Ketchup and BBQ sauce were a problem at first (too spicy), but now I am okay with them.
MSG is also a problem for me, dries my mouth out beyond belief, i it wasn't already bad enough. I have come to realize how many of the chain restaurants use MSG in apparently large quantities. Thankfully I have a mom-n-pop Chinese restaurant close by that does not use MSG!
It just takes time
Kevin 18 YEAR SURVIVOR SCC Tongue (T3N0M0) diag 06/2006. No evidence of disease 2010 Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.� Stephen Hawking | | |
#61063 06-07-2007 02:55 AM | Joined: Mar 2007 Posts: 26 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Mar 2007 Posts: 26 | Wow, my taste recovery was exactly opposite except for the fact I started tasting again about 2 mos. after radiation. It is now almost 4 mos. after treatment and I can pretty much taste everything but sweets. This is probably a good thing in that I was an Ice Cream freak and, at this point,it simply doesn't appeal to me anymore. Due to my reduced saliva and the resultant capacity for tooth decay, I am glad it is the sweets I can't taste. I have also found it difficult to eat foods that tend to be dry like chicken which was a major staple of my former diet.
11/28/2006. Left lateral tongue, partial glossectomy, T3, moderately differentiated. 12 lymph nodes from neck, all clear. IMRT, 30X, ended 02/21/2007.
| | |
#61064 06-07-2007 03:11 AM | Joined: Apr 2007 Posts: 4 Member | OP Member Joined: Apr 2007 Posts: 4 | Thanks Petey, Kevin and Lamont. My BIL was kinda freaked out yesterday by a nurse who told him that he may never get any taste back. I did a search on taste buds here and was happy to see that everyone who had posted said they eventually got "some" if not all taste back eventually. I also read where several said they have taste for a few minutes, or bites and then it, as one poster put it, craps out. I read some threads from here about taste buds to my BIL over the phone and I think he feels a little better. Thanks again Sheila Sister-In-Law to Andy | | |
Forums23 Topics18,249 Posts197,141 Members13,326 | Most Online1,788 Jan 23rd, 2025 | | | |