Previous Thread
Next Thread
Print Thread
Joined: Feb 2005
Posts: 2,019
Nelie Offline OP
Patient Advocate (old timer, 2000 posts)
OP Offline
Patient Advocate (old timer, 2000 posts)

Joined: Feb 2005
Posts: 2,019
I am sure OCF's great collection of news articles will have this eventually, but I thought I would post a link to this article in today's NY Times.

http://www.nytimes.com/2007/05/22/health/22canc.html?em&ex=1179979200&en=07ce650f36dc1389&ei=5087%0A

It is about a budding specialization in caring for cancer survivors in terms of their ongoing medical issues and needs as a result of cancer treatment. If you read the whole thing, it appears that one clinic at Sloan-Kettering was founded by an oral cancer survivor. That certainly makes sense since we are one kind of survivor with tons of serious post-treatment issues: saliva, tooth care, physical therapy needs if there has been surgery, swallowing problems. I am almost two years post treatment but I feel like the ongoing issues I have faced, with swallowing, saliva, neck pain, jaw cramps speech (I get hoarse easily and I am a teacher) and dental care, are ones that have never been fully appreciated by my doctors here. And I *have* been told "just be glad you're alive" which, you know, I AM, but I also want more help and better outcomes for these issues.

Anyway, I'm wondering if OCF has any input to any of these programs where this is becoming a medical specialty. maybe the students should read in this topic--it might be an eye opener!

Nelie


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Nielie,

Thanks for the post. The article is worth reading and there is even a oral cancer survivor written about although they refer to it as tongue cancer.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.

Moderated by  Eva Grayzel 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,916
Newest Members
cokecolagrannie, RiverChuck, Txteacher, UTFN57, Lexlie
13,186 Registered Users
Forum Statistics
Forums23
Topics18,199
Posts197,006
Members13,186
Most Online614
Jul 29th, 2024
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5