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Joined: May 2007
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jordan Offline OP
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I am getting my PEG tube removed Thur (YAY) and I'm wondering if it hurts. It's the one that the dr. will have me under general anesthesia & go down my throat to get it out. He is also going to dialate my throat while in there. Any feedback?? Thanks!!!


SCC-tongueT3N0M0- IMRT 35times-1/07-3/07; along with one cycle of Cisplat & one cycle of Carboplat; weekly erbitux.finished all tx.3/07-supposedly gone. Recurrence 6/07. Age 31-non-smoker/social drinker. Devastated it's back.
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Jordan,

i just had my peg tube removed three weeks ago under general anesthesia. it did not hurt one bit. i woke up from the anesthesia and i went home without a bit of pain.


diagnosed 12/20/2006 with undifferentiated large cell salivary gland cancer
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"Removed under general anesthesia"? Wow, what a blessing. Perhaps there are different design PEG's but mine was apparently removed the old fashioned way, yanked out by one of the Onc. nurses.

I laid back on the table as she instructed and then followed her instruction to grip the sides of the table tightly as "it is going to hurt for just a couple of minutes". She said "here we go" and she could have inserted a butcher knife for all I could tell. She wasn't kidding as it did hurt pretty bad but only for about 5 minutes.

Bill D.


Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
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I had mine removed w/o any anestesia. It didn't hurt a bit. It was a very strange feeling, to say the least. But no pain. There is no reason it should hurt. Its not attached.

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Bill,

Thanks, you made me laugh. I have had similar experiences.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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From my experiences, I would advise getting it changed at least every 6 months. I had mine for 3 years (Feb 04). I had some infection in Nov. 06 and saw a GI doctor. It cleared up with antibiotics but I decided to have it changed. I went to the hospital and he tried to take it out by "pulling" on it. It hurt like "hell". After several tries, we told him to quit (good thing I took some pain killer before going in). I called the hospital where it was installed and I aranged to go there. They tried once to pull again which hurt the same way (felt like my guts were coming out). They decided to put me under and went in through my throat. I was told later that it was in so long it became enbedded and they had to go in with a device to break it up. They said it should be changed every 6 months. Spent one night in the hospital as there was some bleeding and pain. I was put on pain med. I'm OK now. No one told me about having it changed despite regular visits to my ENT. Live and learn! Good luck with yours.

Jim
-------------------------------------------------- SCC Rt lateral tongue Dx 9/03, Surg 11/03 (T2/N0M0);recur SCC BOT and anterior tongue Dx 1/04; surg 2/04 (T4/N0M0) subtotal glossectomy, forearm free flap, floor of mouth reconstruction,pharyngoplasty;trach until 3/04;PEG still have; 36 rad (3/04-5/04)therapy 12/04-12/05; 2 esophagus endoscopies

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Hi all,

I really enjoyed this, I am having my peg tube taken out in June. My Doc says he just pulls it out right in the office. I am going be so happy to finally be able to soak in a hot tub again ( I'm sure not till after it heals) I don't know what the pain will be like but I have had so much pain in the last 6 months I don't think I will notice this much.

Happy summer.

Patricia

3 mos. out of treatment for tongue and tonsil cancer.

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Mine was easy. Doctor told me to lay back and on the count of three.
'One'
'Two'
He rips it out.
I scream 'Son of a bitch'
He says 'Three.'
No problem

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Jack didn't have any problems either - couple of seconds and all done. Great news on getting it out. You probably want to give it a couple of days before you hit that hot tub but you're practically there. It will definitely improve your summer. Regards JoAnne


JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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Call me "chicken", but that was a nap I was glad to take after hearing some of the stories posted about the "yank & tug" methods. One of the nurses told me that some Dr.'s do it "live" but my GI Dr. wants to take a look around while he's in there. He also works closely with all the Cancer center Dr.'s so he kind of gave me a unofficial "sneak preview" of what everything in there looked like. Bottom line, the "cord" was cut, so to speak, and it was another step back to "normal", whatever that means. LOL
Take care,
Steve


SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!

**** PASSED AWAY 10/8/16 ****

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