#60896 05-20-2007 04:51 PM | Joined: Jun 2005 Posts: 349 Likes: 2 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Jun 2005 Posts: 349 Likes: 2 |
Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
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#60897 05-20-2007 07:02 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Michael.....you know that nobody can diagnose anything here, but you know what you have to do....and soon. You have a lot going on, and that's plenty of reason for your throat to be angry at you, but the lesion has me a little concerned. You asked for ideas, so here's mine: Call the ENT tomorrow and get an appointment for this week sometime. In the meantime, keep a good eye on that lesion, to see if it changes, for the better or the worse, so that you can report to the ENT. Keep us posted!
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#60898 05-21-2007 01:43 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Michael, get it checked, if for nothing else, peace of mind.....I know I would be at the doctor's office ASAP!!!!!!!!!!!!!!!Let us know what is happening......praying it is nothing, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#60899 05-21-2007 06:09 PM | Joined: Jun 2005 Posts: 349 Likes: 2 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2005 Posts: 349 Likes: 2 | as you might know, my ENT is at least 3 hours from home, and my normal ENT and team is 3,000 miles away -- BUT, I have been fortunate enogh to have a GREAT oncologist move just 10 mins our lodge in Mendocino!
He is awesome, respectful, intelligent, funny and hopeful.
He is NOT a H&N specialist, but has had a dozen or so cases, and knows his stuff pretty well. He is also quick to admit when something is beyond his expertise.
Anyway, since it is such a small town, I was literally able to see him with 30 minutes notice TODAY!!
He looked at my lesion and surrouding tissue and is Not alarmed, he says it looks like maybe it's from the thrush and not to worry.
I'm going to see him again in a few days for another look and as luck would have it, I am having my 3 months follow-up in just 2 weeks at UCSF so I'll have it examined more then too, maybe I'll ask for a laraygoscope (?)too...
Thanks for the helpful feedback!!!
Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
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