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#60888 05-20-2007 03:04 PM
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i finished radiation and chemo eight weeks ago. On wednesday i went for a cat scan of the neck and a body scan. no changes where found on the scan, it showed the same suspicious thing as the scans prior to chemo and radiation treatment. the dr. believes that it is a false positive because it was done too soon and the tissue might still swollen from treatment. He recommends another scan in eight weeks. Has anyone heard of this? should i get a second opinion? i go to sloane kettering for salivary gland cancer treatment and they are world known but this is really bothering me. if it was too soon what they sent me to do it? i open for opinions.


diagnosed 12/20/2006 with undifferentiated large cell salivary gland cancer
#60889 05-20-2007 04:30 PM
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It makes sense to me that the scan could just be showing inflammation from the treatment at 8 weeks out. I don't know the answer to your question about why they did it so early--but they really are one of the best if not the best for care so I think you're in good hands.


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
#60890 05-21-2007 08:52 AM
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coquito,

I Had a CT about 8 weeks post Tx and my docs told me "complete remission". They then told me there were 2 small spots in my lungs BUT NOT TO WORRY, most likely inflamation. I had another CT 3 months later and those spots were gone BUT there were 2 new small spots. AGAIN THEY SAID NOT TO WORRY. I just had another CT, April 24 and they said NO SPOTS but my thyroid was a little messed up and they put me on Synthroid. I mean why don't they just shoot me? I feel like the lizard my cat eats the tail of; throws it up in the air; puts it's paw on; carries it around in it's mouth; runs when I try to rescue the lizard but won't kill the darn thing.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
#60891 05-21-2007 08:52 AM
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I'm going through the same thing. My scan was scheduled at 6 wks. It showed uptake at the lymph node that was the main concern. The surgeon was optomistic that it was inflammation. After my team met they decided the scan was to early and they weren't as optomistic and want to do a new scan next week which will be ten weeks. This will be the deciding scan for my neck dissection. I hope it is clear. And I am glad I have insurance. I think I would be a little upset if I had to pay 7000.00 for a set of scans and then be told I think we did it to soon. Hopefully your scans will be clear. It sounds like what they are doing is normal though.


Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed. Good Health and Good Help to you.
Lee
#60892 05-21-2007 09:39 AM
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David,
Those cats do love to torture their victims, don't they! smile

Pam


Caregiver of husband, age 57, non-smoker, DX: 4/07 w/undifferentiaed SCC, TX IMRT X37 @ 200, Chemo Cisplatin, 5FU X2. TREATMENTS COMPLETED ON 6/20/07!!
#60893 05-21-2007 11:28 AM
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Pam,

Yes torture, that's the similarity I was speaking of except it's free to the lizard and doesn't last near as long.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
#60894 05-22-2007 08:41 AM
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I also had a cat done 7 weeks post tx. which showed swelling & my docs said not to worry. I just had my first PET done at 10 weeks post tx which still showed "activity" which my docs think is swelling. They said i probaly went too early......then why in the world did they decide to put me thru all of that?.?. Oh well, at least there wasnt anything new & abnormal.


SCC-tongueT3N0M0- IMRT 35times-1/07-3/07; along with one cycle of Cisplat & one cycle of Carboplat; weekly erbitux.finished all tx.3/07-supposedly gone. Recurrence 6/07. Age 31-non-smoker/social drinker. Devastated it's back.
#60895 05-23-2007 01:14 AM
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Marvin just had his 1 month check up and the rad doctor decided to schedule a cat scan but then when we saw the surgeon later that day he called the rad dept to find out why they were going to do a scan so early. He said that he would not do anything until after 12 weeks. So they cancelled the scan(the insurance company should thank him)and said that they will just have us come back in 1 month to check to see if the lyphm nodes were the same size (small mass)they think it isnt anything to worry about at this time. As all have said above to early yet may still be side effects from rad.


Barb
CG for Marvin.

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