#60501 03-29-2007 12:19 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | If I had a $1.00 for every time John told me to "go away and just let him sleep", I would probably be able to pay for the needed repairs to our house! It's a tough call to know when to push for needed mutrition and meds, and when to back off. Caregivers walk a tight rope during tx. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#60502 03-29-2007 01:30 PM | Joined: Nov 2006 Posts: 8 Member | | Member
Joined: Nov 2006 Posts: 8 | you're welcome WM, i know i am caustic frequently, but you've already proven you can take by your taking role in your daughter's recovery
too true JAM, i don't envy any CG. i know i could do it for my kid if she was afflicted the same way, but only because i'm a dad and wired that way. i know every significant other i've ever had (some less significant than others) would crumble if they had to care for me during my treatment.
patience and time, perseverance and compassion, draw strength from wherever you can, its the difference between living, and the opposite. | | |
#60503 03-29-2007 01:40 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Bonnie - I'm glad the onc is doing the thyroid testing. That way you'll know for sure what's happening and that you have covered all your bases. Am sending positive vibes your way.  Amy - you sure are right about walking the tight rope but I'm so glad we have you and OCF for our "safety net" esecially when our favorite survivors get "irksome". :rolleyes:
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#60504 03-30-2007 03:20 PM | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | I experienced fatigue, thyroid results all over the place (I was already hypo-thyroid) which still haven't settled down more than a year after end of radiation and depression more than six months post-treatment. Time will make it right.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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#60505 04-06-2007 01:29 PM | Joined: Dec 2006 Posts: 15 Member | | Member
Joined: Dec 2006 Posts: 15 | Hello,
I am now two months out of radiation and still find myself quite tired after most activities. I had hoped to be back to work by now,(I work in house keeping at a nursing home) but that hasn't happened yet. I am hoping to go back part time in May. I have a friend who is two years into recovery from this cancer and he still gets tired easy, so I'm thinking I'll just have to get used to it. If being tired is the only thing I have to be concerned about I will be happy and thank my lucky stars that I am able to feel anything, and heck if you are tired, take a nap. I do and it feels great.
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cancer of the tonsil and base of tongue. done with treatments 02-06-07. Got too sick to finish last 6 treatments..
Pat | | |
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