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#59924 01-31-2007 08:39 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2004 Posts: 1,116 | Thank you for that very positive post! I am glad your husband is doing so well....Take Care, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10 ---update passed away 8-27-11---
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#59925 01-31-2007 10:18 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | OP "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: Dec 2003 Posts: 528 | Everyone seems to have had excellent outcomes after HBO treatment. Is it very expensive in USA? It is in Australia. Love Helen
RHTonsil SCC Stage IV tx completed May 03
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#59926 07-13-2007 04:17 AM | Joined: Nov 2006 Posts: 7 Member | Member Joined: Nov 2006 Posts: 7 | I have osteoradionecrosis and have gone thru 30 dives in April and are trying 20 more dives now that they have gone in and scraped the bone and removed the infected tissue. I have not found any information about the resection and surgury that is required if the hyperbaric oxygen doesn't work. Does anyone know about this surgery? Has anyone survived this surgury?
SCC-floor mouth/partial jaw removal on 10-5-2006. Thanks for sharing all the info. Hopeful, determined & anxious!
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#59927 07-22-2007 05:22 PM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Oct 2016 Posts: 284 | My mom had surgery due to osteoradionecrosis. She had an open wound and exposed bone for two years it gave her many problems then her jaw broke because the bone was so damaged so she was forced to have the surgey where they replaced her jaw bone with a bone from her leg and a titanium plate. I know that Minnie had the same surgey but not due to OR. It is a very intense surgey but my mom is a lot better since and she doesn't have any pain anymore. She got false teeth and she has problems with drooling but overall she is much better and no longer in pain which she lived with for years. The surgery is definately doable and made my moms quality of life much better. You can send me a private message if you need more info 
Originally joined OCF on 12/12/03 as DaniO or Danijams Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04 surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#59928 07-22-2007 06:40 PM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2002 Posts: 1,140 Likes: 1 | Helen, I was fortunate enough to have insurance to pay for it, but I understand the charges exceeded $15,000 US. Very glad it was not paid by the Insurance Co. of Joanna, as the subsequent implants were. | | |
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