#59755 12-20-2006 11:18 AM | Joined: Dec 2006 Posts: 12 Member | OP  Member
Joined: Dec 2006 Posts: 12 | I am having the damnest time trying to find someone that carries "gravity fed" IV's, I have a few pump ones left (but no pump) & keep getting air gaps that stops the flow - even worse w/the VHC 'cause it is so thick.
Just now got Medicaid, doc called in 5 case prescription of Carnation VHC to CVS pharmacy - Medicaid declined it after they ordered it - said they couldn't do it thru a retail store. Is there some kind of patient advocate, or just a place where you can order & have delivered, that can help people get thru all the red tape....I'm gettin' worn out just trying to get what I need to stay alive.
Age 51, Squamous Cell Carcinoma, lymph node on left tonsil, 6 wks chemo - 7 wks radiation, treatments ended 12/1/06 (hopefully)....
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#59756 12-20-2006 12:45 PM | Joined: Mar 2006 Posts: 58 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2006 Posts: 58 | We get ours through Apria Healthcare. Also the IV bags. No problem with insurance there, but it's not Medicaid. I think Apria is all over the country. Give them a call if you have one nearby. They should have the right bags for you too. We add a little bit of water to our 2cal formula, which is also thicker and 475 calories. It helps go through the tube better.
Caregiver to husband David, non smoker. Dx 1/06 SCC Base of Tongue Stage IV, neck nodes involved. Surgery/Chemo/Rad. Treatment finished 5/06. Waiting. Recurrence in lung, Aug07. 6 months Cisplatin/Erbitux. Spots shrinking after 3 Cisplatin tx.
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#59757 12-20-2006 07:25 PM | Joined: Jul 2006 Posts: 109 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jul 2006 Posts: 109 | Harley, I have tons of bags left that were never opened if you need them, and i also have cases of the formula(whatever that stuff is)so if you need them let me know, i will either mail them out to you, or maybe we can meet up at the woodlands or drop them off there. Whatever is easier for you, if you want them? | | |
#59758 12-20-2006 08:25 PM | Joined: Dec 2006 Posts: 12 Member | | OP Member
Joined: Dec 2006 Posts: 12 | Yes, yes, yes....absolutely - will e-mail my # to you now! Thank You....
Age 51, Squamous Cell Carcinoma, lymph node on left tonsil, 6 wks chemo - 7 wks radiation, treatments ended 12/1/06 (hopefully)....
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