#59652 12-21-2006 03:00 AM | Joined: Oct 2006 Posts: 248 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Oct 2006 Posts: 248 | Tony, Great news. Hope you have a wonderful holiday. Tony I remember you said it was difficult going home to an empty apt. at night. Do you have family nearby. You need to celebrate your good news. Keep us posted . This will be your first xmas as a survivor. One of many to come Tony!!!
Mark D. Stage 3 Nasopharynx dx10/99 T2N3M0 40xrad 2x Cisplatin 5FU. acute leuk 1998.
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#59653 12-28-2006 05:01 PM | Joined: Dec 2006 Posts: 34 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Dec 2006 Posts: 34 | Hello everyone! I hope you had a good Christmas! I just wanted to report in. I had a very good time and spent alot less than I expected! Gift cards are great!I just got back from getting a root canal! The pain was getting to me and it has been about 6 months since it started hurting so I had to do something and as it turned out, I needed it. Today was a karma day absolutely! I had breakfast with a friend then drove an hour to this place called Tupper Lake and I met two people that used to work for me and they were the greatest people ever! Then I went to the dentist and they didn't have an appointment(I screwed up and made an appointment with the wrong dr.) and they got me in and did the root canal anyway! Extremely good karma today! I have been reading alot about zen and it really works! Enough said! I read David's post and he talks about his 4 month mark and I know I will make it and I congradulate him on his! Oh well, that is my check in, NY is still my home and I didn't think I would miss it!But I do and I may stay a while. Tony
45yrs young SCC - TVC - 28 rad trx- future? finished on nov 28,2006
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#59654 12-28-2006 06:43 PM | Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) | | "OCF Canuck" Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 446 | Hey Tony! Merry Christmas to you too! Glad to hear you're doing well. Man, isn't that a slice?? You're happy about having a root canal done, and I'm happy for you...boy, us oral cancer survivors are sick puppies!
That attitude you've got??? Keep it up, it's working fine!
Wayne
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
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#59655 12-29-2006 07:37 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Tony,
That must have been one painful tooth if a root canal hurts less than the tooth did.
I just noticed you are from Saratoga Springs, NY, no wonder you miss it. Lovely town. We come up to play the ponies and eat the fine food for a week every August.
Keep the good Karma going and have a Happy New Year!
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#59656 12-29-2006 03:07 PM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2006 Posts: 378 | Hi Tony,
Sounds like you had a wonderful Christmas and you're on a roll for New Year's. I agree with you about the importance of good karma, may it continue. I look forward to reading more of your posts.
Eileen is right that Saratoga Springs is a lovely area. My sister lives in Clifton Park and she drags me to the races every summer. I particularly love the "it's not a casino" slot machines.
Happy New Year,
Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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#59657 12-29-2006 04:47 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Tony, Next Christmas I am going to send you my Christmas list to take care of for me. Have a great year! Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#59658 01-06-2007 03:04 PM | Joined: Dec 2006 Posts: 34 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Dec 2006 Posts: 34 | Hello Everyone, Well, I have had the worst cold of my life for about 2 weeks. I didn't know you could be that sick from a cold. Now my ears are killing me and that has me worried because one of the causes is irration of the throat. My voice hasn't come back yet either. When I talk it sounds painful and it is. I don't know who to go to, my doctor isn't really an ENT. But I think she would give me antibiotics. If anyone has advice, I'm listening. Thanks, Tony
45yrs young SCC - TVC - 28 rad trx- future? finished on nov 28,2006
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#59659 01-07-2007 08:52 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Tony,
I was just 3 weeks out of Tx and really starting to feel human again and eating more and more different types of solid foods when My wife came down with a cold. As hard as I tried I wasn't able to NOT get her cold. It made me feel like I was pushed back 3 weeks in my recovery. I mean all the typical side effects of a cold are exactly what I was dealing with right after my Tx was completed.
I went to see my ENT because he would see me the next day. After the normal 12 hour wait in the waiting room to see his hiness (and he's a friend of mine) he examined me and said I was fine by ENT's standards and I probably just had a cold. I said I KNOW THAT SO HELP ME. He said I needed to go see a "front line doctor" that's what they do!!
I went home and just lasted it out for a week or so and it went away and my healing continued unabated.
Moral of my story?? Get yourself to a "front line doc" first. If recommended you can always get bumped up to the castle.
Good luck.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#59660 01-07-2007 02:45 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Hmmmm- what body parts do colds usually affect the most?? E ar-N ose-T hroat, I think. David, your ENT needs to go back to school  Tony, a good remedy for a cold is HOMEMade chicken noodle soup made from a fat hen and lots of carrots, onions, celery, eng. peas, etc. in the broth. If you are having trouble swallowing- just puree it. A humidifier by your bed, Vics Vapor rub on your chest, a hot "toddy" to help you sleep. This, too, will pass. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#59661 01-08-2007 05:30 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Amy,
Soup sounds great....just mail me some.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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