#5967 08-28-2005 03:08 PM | Joined: Apr 2005 Posts: 68 Supporting Member (50+ posts) |  Supporting Member (50+ posts)
Joined: Apr 2005 Posts: 68 | I am so sorry to hear of your loss. Just know that Jack is in a better place.
Mucoepidermoid carcinoma-intermediate grade. Removed 3/05. Additional surgery to get clean margins and selective neck dissection 4/05. 30 lymph nodes removed. All clear!!
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#5968 08-31-2005 02:59 PM | Joined: Mar 2003 Posts: 64 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Mar 2003 Posts: 64 | Thank you all.
I was a math teacher, so I not the best with verbal skills. Know though how much I appreciate your thoughts.
I had no idea how many peoople I need to see and things I need to do. Maybe it is purposeful in that it keeps me busy. I think I am still catching up on my sleep, too. I haven't slept this late since college.
Lowanne | | |
#5969 09-13-2005 05:05 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Lowanne,
Please accept my sincere but belated condolences. Know that through the roughest of the journey you and Jack have been in my thoughts and prayers. Also know that each and every victory along the way was celebrated greatly! I am so sorry that Jack's time in this world has come to an end. I truly admire his spirit and your spirit and the warriors you both have been.
Today I pray for comfort,healing and peace for you and your entire family. I pray for Him to continue to fill your heart with love. Please feel free to email me or PM me any time for any reason.
With love,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#5970 09-14-2005 03:52 PM | Joined: Dec 2003 Posts: 47 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Dec 2003 Posts: 47 | Lowanne, I'm so sorry as I just read the post. Please know that you and Jack have been on my mind even though I haven't been to the board much. It's so hard I know, but Brenda is right. Write down all the memories. That has helped me the most. When I remember a little moment, I can smile then write it down. (I have a 175 page WORD document!) And when I really need a pick me up, I go back and revisit those moments again. Most of the time it makes me cry... but always with a smile. Sometimes... I get so lost in those memories it's "almost" like he isn't really gone. Then I snap out of it and realize... HE REALLY ISN'T GONE! He's everywhere! Then... I can go on. I wish you peace. And please read my next post as I want to share something that a close friend gave to me about a week after Don died. It's the poem that pulled me through, and it came at just the right time. Take care, God bless and call me anytime.
Karen
Caretaker/Longtime Girlfriend of Don. Dx 10/31/03 SCC Stage IV T2N3bMO right tonsil/tongue base. 35 IMRT w/8 Chemos,Biopsy 4/5/4 STILL pos. Radical rightside 4/12/4 Reoccurred late August 04 God took his hand from me November 23rd, 2004
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#5971 09-14-2005 04:03 PM | Joined: Dec 2003 Posts: 47 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Dec 2003 Posts: 47 | And if I go while you're still here...
Know that I still live on,
Vibrating to a different measure
behind a thin veil you cannot see through.
You will not see me,
so you must have faith.
I wait the time when we can soar together again,
both aware of each other.
Until then, live your life to the fullest.
And when you need me,
just whisper my name in your heart,
....I will be there.
"Ascension" 1987
Colleen Coral Hitchcock
Caretaker/Longtime Girlfriend of Don. Dx 10/31/03 SCC Stage IV T2N3bMO right tonsil/tongue base. 35 IMRT w/8 Chemos,Biopsy 4/5/4 STILL pos. Radical rightside 4/12/4 Reoccurred late August 04 God took his hand from me November 23rd, 2004
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