#5947 08-25-2005 01:56 PM | Joined: Mar 2003 Posts: 64 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Mar 2003 Posts: 64 | Jack lost his battle with SCC on Aug. 17. He was a tough battler until the end. His positive, optimistic attitude made this journey so much easier for me. He reminded his doctors many times that he would rather die from treatment than the cancer since he was a fighter. He went into Palliative Care on July 23. Palliative Care was o'k to him, but he would have nothing to do with Hospice. He would have run the lady from hospice out of the room if he had been able. He wrote on his white board, "I am not ready to die yet. I will beat the pneumonia and the infection and get in another round of radiation and chemo." Beating the two of them was not to be. The nurses said I could be thankful that it was the pneumonia that ended his life and not the tumor. In the end he was pain-free and at peace. This made his death so much easier for me.
We took him home to Iowa for the funeral and burial in the family plot with his parents, grandparents, great grandparents and great, great grandparents. Yes, it is a whole section of the cemetery. Our kids got to hear many stories of their dad's exploits back in his younger days. These stories meant a lot to them.
OCF was one of the places that I requested memorials be sent. I sure hope people support this great site. As I have told so many, when I needed information, I went to OCF. When I needed advise from someone who had been there and done that, this forum provided what I needed. When I was a bit in the dumps and needed support, I got more comfort from the people in this forum than I should have expected. Thank you. Thank you.
I am constantly on my soap box urging people to select a dental practice that conscientiously screens for oral cancer. I hope that as I get my head cleared and my thoughts back together I will have better ideas on how to send this message.
Appreciativly, Lowanne | | |
#5948 08-25-2005 03:30 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Lowanne,
I am so sorry to hear this news of your loss. My sincere condolences to you and your family.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#5949 08-25-2005 03:54 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Lowanne,
My thoughts and prayers are with you and your family.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#5950 08-25-2005 04:00 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Dear Lowanne
Condolences to you and your family. Jack was fortunate indeed to have shared his life with you.
Love from Helen
RHTonsil SCC Stage IV tx completed May 03
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#5951 08-25-2005 04:12 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Dear Lowanne,
I am so sorry to hear the news about Jacks passing.
You and your family have my deepest condolances.
I take some solace in knowing Jack suffers no more.
I hope all the good memories you shared with him will help you get through this painfull time in your life.
Thank you for thinking of The Oral Cancer Foundation by sending donations in his name. It is very thoughtful of you.
I also thank you for sharing your thoughts on how the OCF helped in your journey. It is truly a special website.
God Bless, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#5952 08-25-2005 05:17 PM | Joined: Jul 2005 Posts: 28 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jul 2005 Posts: 28 | My Sincere condolences to you and your family.
Thoughts and prayers to ALL of you!
With Love,
Dee
Caretaker of Mom with Unresectable stage IV SCCHN, T1-3,T4..No,N1,N2-3. IMRT daily treatment starting 8/24/05. Erbitux every week starting 8/10/05 and Cisplantin every 3 weeks times 3. Diagnoised 7/5/05 -passed and in peace now on 10/1/05
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#5953 08-26-2005 03:18 AM | Joined: Jun 2005 Posts: 24 Member | | Member
Joined: Jun 2005 Posts: 24 | I am so sorry to hear of your loss. You and your family are in my thoughts.
Doreen
Caregiver to husband Lee-Stage IV SCC base of tongue/epiglottis. Had total glossectomy/partial laryngectomy/ radical neck dissec 4/05 followed by chemo and rad.
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#5954 08-26-2005 03:45 AM | Joined: Mar 2002 Posts: 102 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2002 Posts: 102 | I am so sorry for your loss.
Julie
Wife to Kelly
SSC tonsil Stage IV
July 2000
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#5955 08-26-2005 04:00 AM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Dec 2003 Posts: 116 | I am so sorry to hear this news of your loss. My sincere condolences to you and your family.
Think of the good times and the blessed experiences you have had with Jack to relieve your sole.
SCC R-Tonsil T2 NO MO Dec 2003. Completed IMRT Radiation only to tonsils(72Gy) and neck(55Gy)March 04. Detected at age 50.
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#5956 08-26-2005 04:44 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Lowanne, I am very sorry to hear of Jack's passing. I too take comfort that he is no longer suffering. God Bless and Take Care, Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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