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Joined: Apr 2006
Posts: 4
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Joined: Apr 2006
Posts: 4
Anyone on here with ACC? I'm having pain along the right side of my jaw bone up to and including my right ear. I had 6 1/2 weeks of radiation in June, 2005. Was wondering if this pain could be from the radiation this long after treatment. Any help would be greatly appreciated!

Thanks, Beth

Joined: Oct 2006
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Hi Beth,
I'm two years out and still on pain meds. The pain is getting less, I think, so I may start to to less meds. but I guess for some of us it just takes longer. good luck to you.
Chip

Joined: Oct 2016
Posts: 284
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Joined: Oct 2016
Posts: 284
My mom always had pain from after completion of radiation in March 2004...she had an exposed jaw bone where the graph never took it turns out it was osteonecrosis (bone death from the radiation) She was on and off pain pills for the past 2 1/2 years off only because she would get tired of always being medicated and then in September her jaw actually fractured and she couldn't open her mouth. She was in extensive pain. She would have infections in the bone so every couple months then it was another round of antibiotics. The exposed bone area always lit up in her PET scans. So we were always uncertain as to whether or not the cancer was back.

A little over a week ago she had surgery to replace her jaw bone with a leg bone and a titanium plate and I am happy to say finally off pain medication.

I would speak with your ENT about your pain as far as my moms case goes her pain was from the radiation damage.

Take Care,
Dani


Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate

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