#59464 11-15-2006 07:00 PM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | My mom will undergoe her 13 hour surgery tommorrow at 7:00am PST. The surgery is the only option she has because the bone died on her lower jaw and now her jaw is broken and she has had nothing but problems since completion of radiation. The surgery will consist of removal of a non weight bearing bone from her lower leg to replace her lower jaw bone on the right side and a titanium plate. I am pretty nervous so I just wanted to post to get some support and prayers sent her way...
Thank you for listening....I'll keep you posted.
Thank you!
Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#59465 11-15-2006 07:17 PM | Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) | | "OCF Canuck" Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 446 | Dani,
Hang in there. I had the same surgery in June; it wasn't fun, but 12 days after 17 hours on the table, I was at home, eating real food.
The biggest ongoing issue I've had is a limp from the removal of the fibula...all in all, a pretty small price to pay.
She will be a pretty sick lady for a few days, but she WILL improve quickly. Try and keep that in mind that tomorrow will be better than today, and before you know it, she'll be back at home, feeling a lot better than she does right now.
you'll both be in my thoughts tomorrow
Wayne
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
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#59466 11-16-2006 03:37 AM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | Dani,
I will pray for both you and yuur mother. Stay strong.
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#59467 11-16-2006 04:58 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Dani,
I got your moms email yesterday but didn't answer her yet. We've been talking about the surgery and she seems to have a good understanding of what is ahead of her. If you need to talk, she has my cell phone number. Call me anytime.
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#59468 11-16-2006 02:30 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Dani, hope your Mom is doing o.k. today.I'm sure you are a tired lady tonite. Take care. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#59469 11-16-2006 04:46 PM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Well she made it through very well according to both doctors. Thank you so much for your prayers and Minnie a special thank you to you for preparing her for what was ahead. You really helped to put her mind at ease. She has never gotten on the website herself so having somebody who has been through a similar surgery etc letting her know what to expect was sooo helpful.
She went in this morning at 5:30am her blood pressure was a little high but that was their only real concern. We think it went up because she found out that they would keep her awake while they put the trake in so she was pretty nervous. They sent her into recovery at 6:00pm this evening so we still haven't had a chance to see her. The doctors updated us at 11:00am saying that when they opened her up she had a four inch fracture through her jaw and he could really see why she has been in such pain and was unable to open her mouth for the past few months. The muscles were all affected by the fracture. They took out the entire dead bone and the tissue and sent the tissue over to the lab and GREAT NEWS....NO CANCER...yeah!!! What a relief all this time with the exposed bone and her PET scans lighting up etc...what a relief to finally find out there was no cancer there.
They spent the entire afternoon reconstructing and rewiring her mouth and all the preliminary tests show everything is as good as it can be so now we wait for recovery. I will be soooo happy when she can be a real person again without pain.
I'll keep you all posted on her progress and thanks again for everything.
HUGS,
Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#59470 11-16-2006 04:57 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Dani,
I got so emotional reading about your mom and the NO CANCER information.............she will be SO happy to hear this when she is awake and alert. This is a new beginning for her, I just feel it. She is going to be so very happy and pleased with how well her mouth and leg will work. Especially considering the pain she's been in. Again, I'm so happy for you and your family. Please let me know when she's awake and communicating.
Much Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#59471 11-17-2006 07:24 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Dani,
That is wonderful news! I hope for a speedy recovery. We're all rooting ofr her.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#59472 11-17-2006 08:23 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Dani,
I'm really glad to hear it all went so well. I hope this will prove to be the solution to your mother's pain problems.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#59473 11-17-2006 01:48 PM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | That's terrific news. Anytime you hear "no cancer", it's music to us all.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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