#59434 11-12-2006 10:42 AM | Joined: Aug 2006 Posts: 77 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2006 Posts: 77 | Hi,
I'm 10 days out of treatment. I'm probably experiencing the worst pain of the whole time right now, especially when I swallow. My MO gave me Duragesic patches, but I haven't used them because I didn't think I needed it. Now I have to do something. will the Duragesic help with this kind of pain?
Teamshrink
Age 46; SCC BOT T3N1M0l dx 9/06 Cisplatin x3; radiation x42 Completed tx 10/31; Selective neck dissection 12/06
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#59435 11-12-2006 02:23 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2006 Posts: 493 | Team,
It did for me. Keep in mind it takes about 6 to 8 hours to get in your system. I started off with 25mcg and made my way up to 100mcg. I also used morphine sulfate for break through pain. I usually timed a dose of morphine for just about an hour before I ate. After the 2nd week post Tx I started to back down off the duragesic in 25mcg steps. I still take a little morphine for throat/neck/swallowing pain and I'm almost 2 months out of Tx
Tim Stoj 60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#59436 11-12-2006 04:21 PM | Joined: Feb 2005 Posts: 7 Member | Member Joined: Feb 2005 Posts: 7 | Please don't mess around with pain. Use the duragesic. I was up at 150mcg. Even there the pain was bad, I can't imagine what it would have been like without it.
7/04 SCC Stage II Tongue 8/04 Hemi-glossectomi 9/04 IMRTx33
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#59437 11-13-2006 01:59 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I stopped taking all meds at the end of my 1st week because everything I took either made the nausea worse or didn't help it. Nausea was by far my worst enemy during the whole thing. Once I stopped all meds, the nausea went away and I haven't looked back. I did take an occassional extra strenght tynol for the throat pain but that didn't trigger any nausea.
As they say, everybody's different.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#59438 11-17-2006 02:55 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | I am totally flabbergasted that you made it to 10 days post tx without it!!! My pain would have been a "10" without Duragesic! The manufacturer says 24 hours for full therapeutic effect.
Caution: Fentanyl is a very powerful synthetic opioid narcotic follow the doctors orders specifically and read all of the warnings and precautions carefully.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#59439 11-17-2006 03:19 PM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2004 Posts: 837 | I'm constantly amazed when I read about the array of pain medications these days. My mainstay through 39 radiation treatments (17 years ago) was a liquid tylenol/codeine mixture. It sounds to me like the tradeoff was: more pain, zero nausea, zero constipation.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#59440 11-17-2006 03:51 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | I, too, am amazed at the plethora of pain medications offered today. It seems to be a trial and error thing. Since we can only speak from personal experience here, I will say that the fentanyl patch sent John into outer space[literally]. We had to get him off that within a week of when it was prescribed. He has only been able to tolerate Hydrocodone. Different strokes for different folks is the rule, I think. Many of us cannot tolerate certain drugs and the question is "What can we tolerate?" Trial and error is the name of the game.
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#59441 11-17-2006 03:59 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | I was never given fentanyl or duragesic, just liquid oxycodone. I might very well have reacted like John since even relatively mild stuff can really knock me out ( I was given liquid roxicet last summer after the esophagus surgery, and I needed it for the pain, but it made me incredibly sleepy and nauseated as well).
I think there is a lot of trial and error to it.
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#59442 11-18-2006 04:03 PM | Joined: Nov 2005 Posts: 306 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2005 Posts: 306 | The trick to pain management is to get and stay 'ahead' of it. I always waited until I couldn't stand it any longer, and then took the paid meds - BAD PLAN!! When I took the meds regularly, I needed less overall.
Plus, pain is NOT good for you. It does NOT build character. It does NOT prove you are tough. Being in pain actually lengthens the healing time and inhibits some of the metabolism that gets hurt tissue repaired. When you are in pain, much of your energy is spent managing the discomforts - leaving less available energy for healing, for family, for anything... Pain is stupid!! Take your pain meds regularly and think of all the junkies who would LOVE to have your stash!! Tom J
SCC BOT, mets to neck, T4. From 3/03: 10wks daily multi-drug chemo, Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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