#59284     10-08-2006 01:19 PM      |       Joined:  Oct 2004  Posts: 30    Contributing Member (25+ posts)   |      OP      Contributing Member (25+ posts)    Joined:  Oct 2004  Posts: 30  |    Husband is still dry--little saliva--after more than 2 years out but manages by sipping water during the day and using  great mouthwashs for dry mouth--OASIS or BIOTENE--several times during the night.  When he gets up during night he rinses quickly w/ one of these and can then sleep several hours w/ no water sipping.  Great products! Has to get up anyway to urinate from all of the water and BOOST (liquid nutrition) he gets during the day.  Gum helps during extra dry times too; sugarless due to problems which could be caused by sugar on his few teeth!      |      |       |                      
#59285     10-16-2006 03:02 AM      |       Joined:  Apr 2006  Posts: 583    "Above & Beyond" Member (500+ posts)   |           "Above & Beyond" Member (500+ posts)    Joined:  Apr 2006  Posts: 583  |    MaWalton,
  Thanks for sharing.  We all suffer so with this dry mouth.  I have not found the Biotene mouth wash yet.  I do use the other products and it helps. 
   I am 9 months out from last treatment.  The recovery is slow, but am glad for any progress I make. 
  I hope your husband will improve some more in the future. Thanks and take care Diane        
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06...      B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14.  9 yrs cancer free as of Jan. 2015
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#59286     10-16-2006 05:00 AM      |       Joined:  Apr 2004  Posts: 837    "Above & Beyond" Member (300+ posts)   |           "Above & Beyond" Member (300+ posts)    Joined:  Apr 2004  Posts: 837  |    Diane,
  I've generally been able to get Biotene products at some of the major drug stores (like Walgreens).  I've also found them at Costco -- behind the pharmacy counter, although they're not prescription items.
  I think someone on the forum also mentioned seeing them at Wal-Mart.  Hope you can find some soon.
  Cathy        
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#59287     10-16-2006 08:02 AM      |       Joined:  Feb 2005  Posts: 2,019    Patient Advocate (old timer, 2000 posts)   |           Patient Advocate (old timer, 2000 posts)    Joined:  Feb 2005  Posts: 2,019  |    You can get Biotene toothpaste at Walmart. I'm not sure about the mouthwash.  The big grocery store I shop at (Wegmans, not sure how many states they are in) carries all the Biotene products including a jumbo size bottle of mouthwash. Like mawalton's husband, I rinse with that moutwash several times during the day and usually 2 or 3 times in the  middle of the night when I wake up with a painfully dry mouth.
  Do other people have p[roblems with getting enough aerobic exercise because of drymouth? I am finding that just walking fast for several blocks has the back of my throat feeling like the sahara and my tongue sticking to the roof of my mouth.  I have a spray I use (Oasis makes a spray that has xylitol and some of the stuff biotnee has in it and is minty and nice and lubricating) but it really kind of slows me down from getting any good aerobic time in,
  Swallowing water at these points is hard because I'm still having swallowing difficulties and I can do water but only in small siups and with careful swallowing which is harder if you're breathing hard for air!
  So I guess I'm looking for tips too. I'd like to do more aerobic exercise to get back in better shape.
  Nelie        
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia.  "When you're going through hell, keep going"
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#59288     10-16-2006 11:31 AM      |       Joined:  Sep 2006  Posts: 50    Supporting Member (50+ posts)   |           Supporting Member (50+ posts)    Joined:  Sep 2006  Posts: 50  |    Nelie the mouth spray sounds like something my husband would like to try. Biotene is great and there is also a Biotene toothpaste that my husband uses yes it's in walmart and also CVS and Brooks pharamacies. The last couple of days he has really started with the dry mouth were before it was just lots of mucuos and constantly spitting. We have put a humidifier in the bedroom and that has helped with the dryness at night. Take Care everyone        
BOT stage IV SCC moderately diff, invasive. radiation 2 chemos. DX 06/06. Ended radiation 8/11/06. Bleed out from tonsil area from radiation necrosis 10/27/06.
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#59289     10-16-2006 11:33 AM      |       Joined:  Nov 2002  Posts: 541    "Above & Beyond" Member (500+ posts)   |           "Above & Beyond" Member (500+ posts)    Joined:  Nov 2002  Posts: 541  |    Nelie, have you ever tried chewing sugar-free gums or candies? To me, I need them a lot when I go out for any activities including dancing which I am now learning, without which I share your feeling of being in Sahara.The products must be sugar-free so that the damage to our teeth is reduced. Other than a small bottle of water, a bag of candies and gums is a must for me when I travel around. Hope this helps.
  Karen        
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
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#59290     10-16-2006 12:45 PM      |       Joined:  Feb 2005  Posts: 2,019    Patient Advocate (old timer, 2000 posts)   |           Patient Advocate (old timer, 2000 posts)    Joined:  Feb 2005  Posts: 2,019  |    I don't think I even have enough saliva for candy or gum! When I've tried, the candy or wad of gum always ends up getting stuck to the roof of my mouth itself......but the last time I tried was several months ago so maybe it's time to try again.        
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia.  "When you're going through hell, keep going"
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#59291     10-16-2006 01:08 PM      |       Joined:  Apr 2004  Posts: 837    "Above & Beyond" Member (300+ posts)   |           "Above & Beyond" Member (300+ posts)    Joined:  Apr 2004  Posts: 837  |    Nelie,
  It may be worth trying the sugarless gum again (I had some of the same problems with it sticking to the roof of my mouth sometimes, but that seemed to lessen over time).  I think it helped my remaining salivary glands to have something like gum that gave them a regular workout, because more and more of the "normal" function came back gradually, and the consistency eventually got closer to the "normal" range as well.
  Cathy        
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#59292     10-16-2006 02:20 PM      |       Joined:  Jul 2006  Posts: 47    Contributing Member (25+ posts)   |           Contributing Member (25+ posts)    Joined:  Jul 2006  Posts: 47  |    If you go to the Oasis web site,   www.oasisdrymouth.com,  you can download a coupon for $1.50 off either the mouthrinse or the spray. Tom likes to carry the spray around when we're out. Also, our Walgreens has Biotene products on sale this week, buy one at $6.99 get one free. Might not be on sale in all areas--check their web site or the insert in your local Sunday paper. Joyce         
CG to Tom dx SCC 5/06; right neck lymph nodes removed, dx right tonsil and tonsillectomy 6/06; rad and chemo started 7/06; treatment COMPLETED 9/06 33x rad; Erbitux (8x); Cisplatin (2);
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#59293     10-17-2006 04:03 AM      |       Joined:  Feb 2005  Posts: 2,019    Patient Advocate (old timer, 2000 posts)   |           Patient Advocate (old timer, 2000 posts)    Joined:  Feb 2005  Posts: 2,019  |    OK, Cathy, you've encouraged me to dig out my supplies of Biotene gum (which I bought several boxes of before radiation) and try again!
  Nelie        
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia.  "When you're going through hell, keep going"
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