#59008 09-27-2006 01:28 AM | Joined: Feb 2004 Posts: 56 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2004 Posts: 56 | Has anyone else experienced this? Two years after radiation & chemo, my father has these jaw spasms, he calls lock jaw. Immense pain that comes and goes, he cannot move his jaw until it subsides?
VickieM | | |
#59009 09-27-2006 05:15 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Vickie, I have experienced the lock jaw thing, it can be extremely painful, but fortunately it does not last long, at least not so far with mine....God Bless, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
| | |
#59010 09-27-2006 08:00 AM | Joined: Mar 2002 Posts: 4,918 Likes: 70 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 70 | Severe muscle spasms. Massaging them is all I can do. I had this happen last week in the middle of a lecture... took about 30 seconds to get things back to normal. It has gotten progressively worse the further I get out from treatment. Docs say that it is a combination of the scar tissue in the muscles from radiation and nerve damage also from the same source.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | |
#59011 09-27-2006 05:20 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Happens to me too but with no particular regularity. I have Valium and codiene for it but haven't taken the codiene yet. Sometimes it'll "pingpong" from one side of my neck to the other. Hurts like heck to have it massaged and my wife is a certifed massage therapist. My RO warned me of the same thing as Brian - even before radiation. Sometimes it feels just like a charlie horse.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | |
| Forums23 Topics18,286 Posts197,237 Members13,433 | | Most Online2,386
Nov 19th, 2025 | | |
This is another custom island. This one could be used for ads. This spot is one of the best places for ads on your site to be placed. This can be enabled/disabled on a per forum basis.
| | |
|
