#58887 09-10-2006 02:57 PM | Joined: Oct 2005 Posts: 126 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Oct 2005 Posts: 126 | My wife was diagnosed with SCC left lateral tongue in Jan 05. This was followed with partial glossectomy and MRND and radiation and chemo which ended in July 05. Last CT in May 06 was clear. Last visits with dentist and RO in Aug 06 both clear.
For the last week she has been complaining of pain in the tongue and that the underside of the tongue at the original tumor location looked blistery and now there is a sore there.
We have appointments with the dentist and ENT this week and we are paraying for good news. It had taken over a year to get to the point where she was finally feeling better and now we are facing the possibility of a recurrence. We are very concerned.
CG to wife;
Jan 2005 DX SCC Tongue T2N1MO; RND surgery Mar 2005; 35 XRT and 4 cisplatin completed Jul 2005.
Dec 2006 tongue surgery, Scar tissue no cancer.
Feb 2010 neck node FNA - negative.
2010 ORN right jaw plus fracture
2015 ORN left jaw plus fracture
Feb 2016 Lower jaw reconstruction by Fibula free flap+titanium plate - Permanent G-tube
June 2016 Difficulty breathing - Permanent Trachea tube
Dec 2019 DX Cervical cancer - Stage 1 - Surgery Jan 16 2020.
15-20 esophagus/larynx dilations
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#58888 09-10-2006 03:05 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | I'll pray that you have good news this week.
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#58889 09-11-2006 05:15 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Vin, You'll be in my thoughts for good news. Remember it's not cancer until a doctor tells you that for sure it is. How is your wife doing with her swallowing? Better I hope.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#58890 09-11-2006 05:21 AM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Hi Vin,
I know the feeling you are going through. I am in the same situation. I did see my surgeon and I am taking some meds to help with the sore. If it does not clear, then he will go in and remove to be on the safe side of things.
Now this does not mean I have a recurrence, just a sore at this time. We are more prone to sores due to dry mouth. Like Gary says "it not cancer till they say it is" (Gary is one of the guys on the forum)
I will be thinking of you both and I will pray for good news... OK?
take care
Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
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#58891 09-14-2006 12:06 PM | Joined: Oct 2005 Posts: 126 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Oct 2005 Posts: 126 | Thank you to all for responding.
We saw the ENT and he felt that the sore was due to biting of the tongue a night due to dry mouth. The sore is soft and Dr does not feel is cancerous. So we are relieved.
Again, thank for you responses and support.
CG to wife;
Jan 2005 DX SCC Tongue T2N1MO; RND surgery Mar 2005; 35 XRT and 4 cisplatin completed Jul 2005.
Dec 2006 tongue surgery, Scar tissue no cancer.
Feb 2010 neck node FNA - negative.
2010 ORN right jaw plus fracture
2015 ORN left jaw plus fracture
Feb 2016 Lower jaw reconstruction by Fibula free flap+titanium plate - Permanent G-tube
June 2016 Difficulty breathing - Permanent Trachea tube
Dec 2019 DX Cervical cancer - Stage 1 - Surgery Jan 16 2020.
15-20 esophagus/larynx dilations
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#58892 09-14-2006 02:23 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Vin, I'm glad to hear your good news.
Are you taking care of yourself? Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#58893 09-14-2006 04:03 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | That is very good news, Vin. I have small sores on my tongue on and off from eactly what your ENT said. If I am too sound asleep to wake up a couple of times at night and swallow some water and gargle, my tongue can get sandpaper-dry and swollen and when it brushes against my teeth it get irritated.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#58894 09-14-2006 04:36 PM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2002 Posts: 1,140 Likes: 1 | Vin, I had the same problem and the ENT was always initially alarmed when I showed up for a scheduled check up with lesions on my tongue. Because one side of my tongue and surrounding tissue is partially numb, I wasn't aware I was doing this. Using a Breath-Right nasal strip keeps my mouth closed at night. This might work for your wife. I add my congratulations that it all worked out so well. If only we knew when worry was warranted, we could save ourselves a lot of trouble! | | |
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