Previous Thread
Next Thread
Print Thread
Joined: Jun 2005
Posts: 1
Member
OP Offline
Member

Joined: Jun 2005
Posts: 1
My husband had part of his tongue removed and 19 lymph nodes in one side of his neck removed about 5 weeks ago. How long should his face be swelling? It is really good, and then the next day, it is swollen again. also the same with his tongue. I am brand new at this posting discussion thing, so hopefully I can figure out how to see your response. Thanks.

Joined: Mar 2003
Posts: 1,384
Likes: 1
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Mar 2003
Posts: 1,384
Likes: 1
Hello, It isn't unusual for swelling to be a problem for a while yet. Try putting boards under the matress to elevate his head a few inches. Also there is a massage tecnique that will help the lymph flow. It is done with the finger tips and gentle pressure. kind of a stroking motion in the direction the lymph flow should be (downward towards the chest).


Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
Joined: Aug 2003
Posts: 1,627
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Aug 2003
Posts: 1,627
Swelling can be a problem and Mark makes some good suggestions. Be sure to mention this to your husbands doctor also.


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
Joined: Jan 2005
Posts: 108
Gold Member (100+ posts)
Offline
Gold Member (100+ posts)

Joined: Jan 2005
Posts: 108
The physio started working on my neck at about four weeks, stretching and mobilizing scar tissue and massaging for lymph drainage. Best of all she taught me how to do it myself. Four months plus after a radical neck dissection and some great physio help there is still a small amount of swelling that will likely be permanent because of the extended nature of my surgery.
As Mark noted, elevating the head of the bed is a good thing for drainage.
Hope you have a physio referral in your hand soon.
All the best, Fran B.


SCC Base of tongue diag. April 04 Stage IV, mets to rt. neck multiple nodes 35 rads+8 boosts First recurrence Jan05. Rt.rad neck dissection Feb02/05. Recurred with bone mets in neck July 05.
Committed to survival with dignity.
Joined: Apr 2005
Posts: 2,219
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Apr 2005
Posts: 2,219
If it is determined that your husband's problem is from lymph accumulation you should look into finding a lymphedema therapist. These people do exist as my physical therapist was also a ymphedema specialist. Lyphedema is a common problem after lymph node removal and one that can be solved with proper massage techniques as the members above have mentioned. The basic technique is to get the lymph over to the other side of the neck so that it can then drain naturally.

It is best to have this demonstrated to you and your husband rather than to try to learn it here.

I also had a stage I tongue squamous cell (with 30 lymph nodes removed). Sounds like a similar situation to your husband. If you or he would like to speak with me about this or any other aspects of his situation, send an email or private message with your phone number and I'll give you a call.

Jerry


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
Joined: Mar 2005
Posts: 109
Gold Member (100+ posts)
Offline
Gold Member (100+ posts)

Joined: Mar 2005
Posts: 109
My husband is now 7 weeks out from end of IMRT treatment at Moffit Cancer Center in Florida. He seemed to be having a relatively easy time of it through treatment. Had the peg, but never needed to use it. Didn't lose any weight. Drove himself to treatments up through Week 6. At 3 weeks out, rad oncologist said he was doing great, better than average. However, then his father (who had been in a nursing home for a year) became very ill and died and he seemed to stop improving much during the next 3 week period. This week, after more pressure to start the trimonthly dental visits, he had his teeth cleaned. He now has a very sore throat, can't swallow as well as he could last week, and feels just rundown overall. Also, had a f/u visit with his surgeon last week as well and was told he needs to wait a while longer before trying massage therapy for the swelling in his neck. Any thoughts about what could be happening here?


Wife of Jerry - Dx. Jan '05. SCC BOT T1N2BM0 + Uvula T0N0M0. Stg IV, Surg on BOT and Uvula + Mod Rad Neck Diss.(15 rmvd, 4 w/cancer), IMRT 33x. Cmpltd 5/9/05.

Moderated by  Eva Grayzel 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,264
EzJim 5,260
Brian Hill 4,918
Newest Members
Cbdrmorton, john173, Movingwater, Baleeve, sartruc
13,340 Registered Users
Forum Statistics
Forums23
Topics18,255
Posts197,154
Members13,341
Most Online1,788
Jan 23rd, 2025
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5