#55569 10-06-2004 02:53 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | Hello All,
Even though I can eat orally (peg tube removed in Feb) everthing gets stuck in my throat. Up high where the trac tube was. I talked to my on'gist last Monday and am scheduled for a barrium test tomorrow before my scheduled mri. They want to see what is blocking my throat from swallowing. After the test they may try and stretch my throat with a type of bladder they slide down your throat and inflate to stretch it. I'm told it's a very quick procedure and usually helps. Anyone have this done to them? What was it really like.?
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#55570 10-06-2004 05:37 AM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Oct 2002 Posts: 546 | Danny Boy, I remember that Danny G. (digtexas) had a procedure done to stretch his esophagus. I did a search and found that his was done with a solid device instead of a balloon, and I believe he was pleased with the results. The search also showed that larryfb had the balloon procedure done and he was also pleased with the results. There were also a couple others who had this procedure done. I'm sure some of them will respond. Rainbows & hugs, Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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#55571 10-06-2004 05:38 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2003 Posts: 928 | Danny have you seen the posts on Vitalstim? From what I remember it a kind of Tens Machine that help the muscles needed for swallowing. I will be happy to look for info if you would like?
Take care of yourself Danny. love Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#55572 10-06-2004 06:51 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Danny,
My 89 year old father had his esaphagus stretched 3 times this spring after he had suffered several strokes. It worked like a charm, no more swallowing problems.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#55573 10-06-2004 09:27 AM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Dec 2003 Posts: 116 | My father in law had his esaphagus stretched several times and it helped with swallowing and chocking. He did not have any cancer, just a tight esaphagus.
SCC R-Tonsil T2 NO MO Dec 2003. Completed IMRT Radiation only to tonsils(72Gy) and neck(55Gy)March 04. Detected at age 50.
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#55574 10-06-2004 10:43 AM | Joined: Sep 2003 Posts: 153 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Sep 2003 Posts: 153 | hi Danny,
i indeed did have the stretch twice.. it is a fairly simple proceedure. my esaphagus was tight due to radiation. scaring was on the outside rather than inside, so the fix is longer lasting. i know a woman who has to have the proceedure done every 6 months, whereas i'm still ok a year later.
i also had the barrium test done a couple of times and i think that it was almost a waste of time. the docs looked at it, but never simply said 'get the stretch.' instead they left the decission to me... i put it off because i wanted my throat to have time to heal.
there is a small risk of death due to bleeding out if something goes wrong during the proceedure.
i pray that the stretch will work for you.
cu, larryb | | |
#55575 10-08-2004 02:41 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | Thank You,
I had the test yesterday. Hoping they can do the stretch soon. Will keep you posted.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#55576 10-09-2004 07:09 PM | Joined: Jul 2003 Posts: 235 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jul 2003 Posts: 235 | Danny Boy, My mom had her throat stretched as well. It seems to have worked as she is now able to drink some liquids and has started eating oatmeal -- and she really didn't experience any discomfort from the procedure itself either. Best wishes, D
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice. Died 10/13/15. What a long and difficult journey.
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#55577 10-26-2004 06:34 AM | Joined: Oct 2004 Posts: 2 Member | Member Joined: Oct 2004 Posts: 2 | | | |
#55578 10-26-2004 06:45 AM | Joined: Oct 2004 Posts: 2 Member | Member Joined: Oct 2004 Posts: 2 | Hi Danny Boy,
Sorry about my first post. It was my 1st one and I hit the wrong button. I also am considering an esophagial stretch because one year after radiaion, I still get food stuck when swallowing. It sounds vey similar to your experience. I have had a hard time talking my ENT into doing the procedure. I was encouraged by all of the positive responses you received. Please let me know how it turns out. Good Luck! | | |
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