#55390 08-17-2004 05:52 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Sabrina I'm convinced you have lied to us. It says in your bio that you are in investments and such. Instead I believe you are a NY comedian. (which by the way might be handy as in "well mr. customer/investor, we managed to loose your entire life savings but.....here's a good one so you feel better)  I am sure there are OVER 2000 people trying to bend their neck enough to see if this "spasm" happens and the mental image of that is quite the picture!
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#55391 08-18-2004 12:00 PM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Dec 2003 Posts: 116 | I think Sabrina is actually the person imitated by Elaine on the old Sienfeld show when she did that funky, out-of-sync-with-any-music dance move that totally embarrassed all her friends at a party!! Now we know who you REALLY are, Sabrina! Christine
Wife of Scott: SCC, Stage I retromolar 10/02--33 rad; recurrence 10/03--Docetaxol, 5FU, Cisplatin; 1/04 radical right neck, hard palate, right tonsil; recurrence 2/04--mets to skin and neck; Xeloda and palliative care 3/04-4/04; died 5/01/04.
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#55392 08-18-2004 02:30 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hi Sabrina,
Nice to read a lighthearted post. We all have to keep a sense of humor. Sometimes it's diffucult but I can find humor in alot of things. Hoping for the best for you,
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#55393 08-25-2004 10:55 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Hello all,
Well....I had a chance to get together with Sabrina for lunch the other day, and I had to do the inevitable -- ask for a demonstration of this maneuver. So we sat in this nice restaurant doing the chin tuck with her explaining how the butt-knee spasm was working. I have to admit, I still couldn't replicate it, but I gave it my best shot!
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#55394 08-25-2004 11:15 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | I don't think I be challenging Sabrina anytime soon at the OCF dance contest in Vegas...
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#55395 08-25-2004 09:52 PM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Sabrina
As far as I can see regarding the people including me, who lurk about on this forum, 24/7, ANYTHING IS NORMAL. At the moment I cannot use the phone my ear is numb and I have no idea where the handset is.. way to go. yep
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#55396 08-26-2004 12:10 PM | Joined: Apr 2004 Posts: 156 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Apr 2004 Posts: 156 | Everyday is a new adventure. The latest involves the bathroom - or at least trying to use it. My theory? I had the runs for so long (and I do mean runs - every five minutes I'd take off sprinting to the bathroom, obstacles - including husbands and cats - be damned), that my body became used to it. Now that things have a more natural flow, my body has decided "nope. not gonna happen. not this way. I had it easy for months, and that's the way I like it". So now there a tear in there. A tear? Yes, a tear. And when I use the bathroom I swear I see God every morning from the pain.  The fact my husband hasn't found me passed out on the floor, towels stuffed in my mouth to stop screaming, is a darn near miracle. I don't know what giving birth is like, but really girls, I MUST have one up on all of you. Which also leads to me wonder about personal relationships. The exit items are not particularly challenging here. And while this has been a primarily exit only..uh...exit, save for the professional medical exam (which, btw, is one of the more humbling procedures to request, "Yes, doctor, can you please look up my...."), I now could never imagine giving anything else a try. And for those of you individuals that prefer NOT to discuss this problem so publicly, the solution is diarretics and baths. All the medical science in the world, and I'm on Senekot and bath salts. Sabrina | | |
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