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#55001 06-02-2004 11:10 AM
Joined: Dec 2003
Posts: 2,606
Likes: 2
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
Carol,

My tongue never did swell up.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
#55002 06-02-2004 06:37 PM
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
Carol,
my tongue didn't swell up either. I had the full amount of radiation (including the "boost"), IMRT that is. Maybe if she had XRT that would be a factor.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#55003 06-02-2004 11:40 PM
Joined: Sep 2003
Posts: 30
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: Sep 2003
Posts: 30
Carol, My tongue did swell up.
Mary

#55004 06-03-2004 05:25 AM
Joined: May 2004
Posts: 34
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: May 2004
Posts: 34
Mary - how long before the swelling subsided?


Caregiver/twin sister to Cathy diagnosed with tongue cancer Feb. 2004/partial glossectomy and neck dissection Mar 2004/recurrence may 2004
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