#53952 09-03-2003 02:21 AM | Joined: Mar 2003 Posts: 251 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Mar 2003 Posts: 251 | At about 5 months post treatment, one of my husbands biggest complaints is this spot on his inner gum where the bone is actually exposed, creating a sharp place and associated pain. Last ENT visit, the doctor actually shaved away some of the bone so that it wouldn't be so sharp, but it is still really bothersome. The radiation oncologist suggested it was from the radiation. I am wondering if anyone else has had this problem? If so, any ideas on getting it to heal faster?
Thanks, Anita
Husband Dx 12/02 Stage 4 Tonsil Cancer T1N2bM0; surgery, radiation, chemo 1/03 - 4/03.
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#53953 09-03-2003 08:12 AM | Joined: Mar 2003 Posts: 62 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Mar 2003 Posts: 62 | Anita, I have an area that the bone is somewhat exposed as well. I have problems with bone chips trying to work their way to the surface and lodging into the gum. Major pain from that..... What I then have to do is have the dentist go in and remove the bone chip and smooth out the bone again. This has been going on for 6 years. Mine never healed over but it did get better as the years passed. They tried hyperbarrics and that did not work to heal it over. I hope this helps somewhat. David | | |
#53954 09-06-2003 06:12 AM | Joined: May 2003 Posts: 41 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: May 2003 Posts: 41 | Hi Anita, I had a similar thing. What started as a "canker sore" turned into hard, sharp things. This started 3 months post radiation. A couple of doctors said to leave them alone because they didn't want to risk bone infection and the gums not healing. An Oral Surgeon who sees alot of cancer folks saw the damage they were doing to my tongue, and removed them. New ones would grow back, and a couple got kinda big. He kept removing them, and the gums healed just fine. He said they would go away, and they did. He said they were "bone spiculas", kinda like a bone spur. O-O
Head and neck SCC TXN2bM0 stage IV Finished treatment 6/02
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#53955 09-06-2003 06:46 AM | Joined: Mar 2003 Posts: 251 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Mar 2003 Posts: 251 | Thanks, Powerlifter. I was trying to remember what the ENT called it - yes, it was bone spicula. Makes me feel better that it is fairly common. And, yes, the pain mainly comes with the cutting it does on his tongue.
Anita
Husband Dx 12/02 Stage 4 Tonsil Cancer T1N2bM0; surgery, radiation, chemo 1/03 - 4/03.
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#53956 09-06-2003 03:38 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | I had them for about 6 months. they were sharp and after about two weeks they could be removed by scraping them off. Curiously no one thought they had anything to do with radiation....
The good news is they stopped occuring after 6 or 8 months.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#53957 09-07-2003 01:02 PM | Joined: Jan 2003 Posts: 7 Member | Member Joined: Jan 2003 Posts: 7 | I started to feel like I had a bad canker sore and then felt the sharpness. My tongue wouldn't leave it alone and my tongue became very raw. My ENT scraped it off and put me on clindamycin for 3wks incase there was a possible bone infection. It went away for about 2-3 weeks and is now back. I hope and am reassured that it's happened to others and may possibly go away. by the was it's seems it's common about 6mo post radiation. Kathy | | |
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