#53716 09-05-2005 11:17 AM | Joined: Apr 2003 Posts: 136 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Apr 2003 Posts: 136 | i think this sign goes too far. http://www.crazyguyonabike.com/journal/page/pic/slideshow/?o=aw&pic_id=40753&v=p1 i ate gallons of ice cream after my treatment and i think it served me well. chocolate was a challenge because it was colder than most... but i fought thru that too. what other flavors do you all like? cu, larryb
'01 diagnosis.. jaw hing and base of tongue. surgery not possible. JHU used radiation and chemo to seemingly rid me of the beast. peg for about 19 months. 100 cases of 24 cans of liquid food. 9 months eating therapy. 3x esophagus stretches. non-smoker. previously a social drinker.
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#53717 09-05-2005 12:02 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2003 Posts: 928 | Now thats just plain mean ...NO ICE CREAM!!
Have not met one I didn`t like ....bring `em on bring `em ALL on....lol
Did you go on that bike ride Larry? Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#53718 09-05-2005 02:00 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | I'm still eating tons of ice cream daily Larry. Mixed in with the smoothie's. Strawberry, chocolet and vanilla. A hot fudge sunday doesn't hurt either. Cheesecake helps to. Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#53719 09-05-2005 02:22 PM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2004 Posts: 837 | Just moments ago I finished a heaping dish of Cookie Dough and Extreme Chocolate.
Cathy G
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#53720 09-05-2005 02:29 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Excuse me please, while I go to the kitchen. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#53721 09-06-2005 02:00 AM | Joined: Feb 2005 Posts: 663 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Feb 2005 Posts: 663 | Speaking of Ice cream. I have a question.
Harry has been out of treatments now since May and his first 3 month check up is this month.
I bought him this gigantic jug of muscle builder weight gain stuff from the muscleman store. He mixes it with ice cream, milk, and boost.
Still he does not gain any weight. He has hovered around 150, up and down a couple of pounds every now and then but he has not really made any move upward at all.
Is this normal? When should we worry about him gaining? He has not lost anymore significant weight. Like I said he fluxes up and down a couple of pounds but he is likewise not gaining anything either.
Thanks, Cindy
Caregiver to ex-husband Harry. Dx 12/10/04 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)-(12/10/06) 2 yr. Survivor!!!
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#53722 09-09-2005 01:34 PM | Joined: Jan 2005 Posts: 191 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Jan 2005 Posts: 191 | You know what Cindy? I bought some of that mega muscle stuff too with "Weight Gainer" written across this huge plastic gallon tub. It hasn't helped me gain an ounce. When I seriously tried to use it, my body dumped it out either end. Someone on this very forum told me that it was one of the drawbacks to the protein powder, especially the "weight gainer" stuff.
I've been trying to eat stuff like cheeseburgers, fries, ice cream and last night I stuffed myself with cheesecake BEFORE going to bed. My Chinese radiation oncologist even suggested eating ice cream before bedtime (so I've taken that a step further to just feast in general and making sure I brush my teeth before passing out into sleep) Even with this sort of schedule of eating, invariably my body still wants to reject it. I'm getting use to getting up at three or four in the morning to run into the bathroom.
I'm trying to be patient with the weight gain these days. As long as I continue to eat and enjoy doing so, I'm hoping that sooner or later I'll be like others here and have to start cutting back on the calories. Others have also told me that the metabolism changes and may take years to kick back into normal gear again.
Jen | | |
#53723 09-09-2005 02:48 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Jen, I am stuffing my husband like a "Christmas goose" right now. I'm cooking tons of veggies in chicken stock and butter, pasta, pasta, pasta in cream or tomato sauces, rich bean soups with bits of ham, long and slow cooked pot roasts so the meat falls off the bone, roast turkey[completely covered in foil to keep it moist]steamed fish,chopped apples sauteed in water and butter, etc. This was our last 7 days menu. Maybe your system could tolerate more of this kind of food and less dairy, sugar and grease.
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#53724 09-09-2005 03:14 PM | Joined: Apr 2003 Posts: 136 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Apr 2003 Posts: 136 | this is a test. i just wrote a message that was blocked.. i want to see if i have a problem or not.
more later, cu, larryb
'01 diagnosis.. jaw hing and base of tongue. surgery not possible. JHU used radiation and chemo to seemingly rid me of the beast. peg for about 19 months. 100 cases of 24 cans of liquid food. 9 months eating therapy. 3x esophagus stretches. non-smoker. previously a social drinker.
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#53725 09-10-2005 10:50 AM | Joined: Jan 2005 Posts: 191 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Jan 2005 Posts: 191 | JAM, I would love it if you would come and cook for me. I sometimes envy those patients that have caregivers constantly cooking and fixing for them. Now, I'm grateful that I have improved since treatment, but it's all I can do sometimes to do the bare necessities of my house (Ironically nobody ever took over laundry detail) and my children are happy that my husband is no longer trying to cook for them.
Here's the rub, though. It takes almost total focus for me to gather the groceries, spend time on my feet cooking and then having the energy to eat. Right now it's easier for me to just take myself through a drive thru. And I must confess we have quite a few meals out because sometimes I am just too pooped to cook.
I try to keep alot of goodies around to tempt me like ice cream bars, fudgesicles, ice cream, puddings and cheesecake. With three teenagers in the house and a hungry spouse, it's a common thing to go to the kitchen and find out that some rat has eaten ALL of my stuff and only an empty carton remains. I try to buy double on the treats just so when I do go to the freezer or fridge that there is a good chance that I'll have something to nibble on.
They also sometimes forget that I'm not 100% better yet and constantly suggest foods that might cause me problems. Today for lunch, my well intentioned spouse chose a really rough sort of rustic wheat bread that really gave me problems. Anymore, I try to make do with whatever, but sometimes it's tough.
Any patient out there that has a spouse who can cook and adapt menu items to keep them going is surely a lucky duck to have that sort of support. Then again, I'm glad that I at least have the money and energy to get myself to the grocery store or restaurant when a craving for food hits. Hopefully, now that I'm on the road to recovery, my energy and stamina will once again kick in and I can be the chef again that I use to be. Winter is on it's way and I already cannot wait for winter squash, soups and stews.
Jen
Jen | | |
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