#53645 03-24-2005 07:19 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hello Grant, good follow-up note.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#53646 03-25-2005 05:36 PM | Joined: Mar 2002 Posts: 4,918 Likes: 66 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 66 | Sharks and cancer..........here we go!! Anyone who takes a good look at shark cartilage and the bunk of misinformation and falsehoods surrounding the money making effort to get people to consume it, knows that this is another bit of pseudo-science built on the desire to make money. While is true that many positive things have come from natural occurring substances, do not forget that cancer is essentially a genetic disease. The basis for a cure will come from a technology that reverses the genetic aberration that manifests itself as cancer. This is quite different than plant based biotics that cure bacterial infections.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#53647 06-24-2005 03:48 PM | Joined: Jun 2005 Posts: 349 Likes: 2 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2005 Posts: 349 Likes: 2 | I've been reading more and more about the famous viral link to some cancers too. http://my.webmd.com/content/article/78/95750.htm http://www.oralcancerfoundation.org/news/story.asp?newsId=51 I know this isn't a new concept, (a lot can be found on this very site) I think the link that some viruses change the genetic makeup somehow will be the ultimate linkage. A fascinating book is: "How to win the Nobel Prize" by Prof. J. Michael Bishop http://www.npr.org/templates/story/story.php?storyId=1334346 Incidentally, the author of the two books "Shark's Don't Get Cancer" has been proven wrong several times. Sharks DO in-fact get cancer, and cancer in their cartilage too. http://my.webmd.com/content/article...p;condition=Home%20&%20Top%20Stories http://www.straightdope.com/columns/041022.html But, I know shark cartilage has 'some' therapeutic affects on the growth of new blood vessels. I guess it's been clinically proven to retard this growth. My dad has taken it religiously as a treatment (which for him has worked) of an outbreak he gets occasionally (skin lesion). Anyway, following his heart attack the cardiologist insisted he stop taking the shark cartilage since it retards new blood vessel growth. http://www.cancer.gov/newscenter/sharkcartilage Just some anecdotal information I wanted to share.
Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | If anyone even bothers going back to posts from 2005 I would sure like to join in as I have spent time understanding mushrooms because I am half Japanese. Mushrooms are a nutrition item and not to be confused with medicine. Benefits are increased immunity to colds maybe but there are multiple types. The main ones are shiitake, maitake and reishii. Reishii are really the supershroom that gives the best benefit health and nutrition wise by taking dry mushrooms, dried red ginger from a Chinese herbalilst and putting in a crock pot and drinking the juice like tea. Benefits are plenty but curing cancer isn't one. It is more boosting immunity from things like colds but not even sure other than the first two really taste good!
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Ed At first, I thought; Oh No, now I have to be the "bad guy" again, and start digging out the phase one studies and the critiques of all those Japanese "studies" and spell out the difference between eating mushrooms and getting injections of beta glucan (the active ingredient in Maitake). But instead you were very reasonable: [quote] Benefits are plenty but curing cancer isn't one.[/quote] Thank you. By the way, one reason people don't usually resurrect 7 year old threads is that a lot of the information is badly outdated. Like the "interesting" theory of a virus causing this cancer, when now we know for a fact that HPV does cause oral cancer. Another example in this old thread, is the concept of having the "maximum " radiation done (presumably 77 GY) - which may have been true 7 years ago, but as Kelly211 and myself and PaulB show, not true anymore. 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Its best not to comment on old threads. It can create confusion as too often members do not pay attention to dates and wont realize things are out dated. It will also push down newer posts. Many times on old threads, there will be posts by beloved members who are now deceased which can be hard to read. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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