#53454 05-12-2004 09:33 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Dee, great story.
Ok, here's one more example of my sense of humor and how things work here. Doc is telling me about how they are goign to do the surgery, and about taking skin from my shoulder and using it for graft for tongue. My co-worker who was with me at the time for moral support asked if I would have to shave my tongue. Doc's reply (and this is Hong Kong so you have to get accent right) "Oh yes, will have to shave tongue"
At that point, I came up with a question. Doc, could you draw exactly where you are going to take the graft from? He asked why, and I told him because I wanted to have something really rude tatooed there so when I stuck my tongue out...
Luckily that didn't happen, my wife would have killed me.
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#53455 05-26-2004 04:31 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Bob-
I just stumbled upon this post and have never laughed so hard!!! What a grand idea to start tatooing body parts that might end up a tongue! I think the idea should be added to the OCF list of things to do before surgery! I'd add a smiley face here but I haven't figured out how to do that yet :-) Toooo funny! - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#53456 05-26-2004 06:47 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Bob
just got time to have my arm tatooed before sugery.. any suggestions for subject matter..
:rolleyes:
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#53457 05-26-2004 07:11 PM | Joined: Mar 2003 Posts: 189 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2003 Posts: 189 | Ok guys....my warped humor How about: "Too much coffee!" (at least my Dad always told me this would happen to my tongue, if I did) "Kiss This!" "Hmmmm....Rogaine... where? "NO...THAT'S NOT MY MUSTACHE!" "I'm a Madonna fan" Much Love  , Mandi
Husband diagnosed with stage III tonsil and floor of mouth cancer in August 2002. Three rounds of chemo/42 RAD treatments. Upper right lung lobectomy in March 2003. (Benign)
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#53458 05-27-2004 05:01 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Kris,
When you type your reply look to the left and there is a link "Instant Graemlins" that lets you pick one. You move your cursor over one and it tells you what it is. :p
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#53459 05-27-2004 05:02 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Helen,
It's a bit long but how about:
My heart's not on my sleeve but my arm's in my mouth!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#53460 05-27-2004 07:20 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Thanks Ed
Need to ask how much of my tongue they are going to remove before anyone comes up with something longer than that... How did you know I had a big mouth?.. :p
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#53461 05-27-2004 09:14 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 |  This one would look good on a tongue! - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#53462 05-28-2004 02:45 PM | Joined: May 2004 Posts: 137 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: May 2004 Posts: 137 | Well that was a great laff for me, some I have also used. I due to surgery and almost all my tongue removed, I can't talk. So I use little note books, wel every now and then I tear out the pages that I have written on. I was doing this standing over the trash can when my sister called, my husband said to her that he wasn't doing anything but I was talking trash again..I lost it, lol, we both laffed as well as my sis.. About having mouth cancer, I tell everyone, moma always said my mouth would get me into trouble..Humor is some powerful medicine..I use it as much as I can. Thank you all for sharing your laffs with us. always, Vicki | | | 
#53463 06-02-2004 03:20 AM | Joined: Apr 2003 Posts: 148 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2003 Posts: 148 | I cannot believe I am sharing this dream with you all, but since I shared it with my office prayer group yesterday, I hope no one is offended by it. I work in a hospital, but received my treatment from another facility that has an ENT department specializing in Head and Neck Surgery, Head and Neck Oncology, etc. For insurance purposes, my Dr has kindly allowed me to have my testing done where I work and have it covered 100% versus the $300 deductable then 90% at his facility. My last visit with him was in May for him to view my CT scan, chest xray and lab results, and everything came out great. I have a 5-6 inch scar from my lymph node removal on the right side of my neck. All but two inches of it has virtually disappeared, the noticeable two inches hides in a natural fold in my neck but is pink and visible if I move a certain way. This spot is right where my adam's apple would be if I were a guy. My doctor offered to revise it if it bothered me, but I consider it my badge of courage. I dreamt the other night that I was told to go to the lab for some more tests. The lab tech took a sterile swab, ran it along the pink part of my scar and placed it in a test tube. When the results were complete, they were posted on the lab door with everyone else's test results - kind of like posting if you made cheerleading on the gym door or test results in college on the professor's office door. By my name it said "Make an appt with Dr. G IMMEDIATELY." I frantically called his office and was told to come in. When I got there, he was livid... very angry with me and yelled "Are you going to trust me, your doctor, or the hospital where you got your testing done?" Of course, I said I trust him completely, and what was my test result? He said the lab was recommending I have radiation therapy because I now had cancer of the penis on my neck! I have absolutely no idea where this came from other than my college daughter just completed her finals, and high school daughter is taking hers now. Anyone else having weird dreams?  Sincerely, Lisa :rolleyes:
Lisa
SCC of Tongue Stage 1 (T1,N0,M0)
partial glossectomy,modified neck dissection 4/14/03
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