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#53327 10-20-2007 09:17 PM
Joined: Aug 2003
Posts: 1,627
minniea Offline OP
Patient Advocate (1000+ posts)
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Joined: Aug 2003
Posts: 1,627
My insurance company denied payemnt for my newly installed PEG tube. Now mind you, they gave me the referral for it............but have now denied it saying it's "not necessary". Geez.


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
#53328 10-21-2007 12:14 AM
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
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That sure is crappy, Minniea! What on earth do they know about how "necessary" something is!? I saw an interview on Oprah with some insurance people and good ol' Michael Moore and the total insensitivity of it all struck me when I heard this insurance lady say that they just had to deny some claims because otherwise they would not be able to stay in business. I don't think it has anything to do with how necessary something is, they just have to keep making the big bucks. There are two things that come to mind in rectifying this:
1) Broken record method: keep asking for what you want over and over again until you get it.
2) Squeaky wheel method: Yell like H E double hockey sticks! Seems like the one who makes the loudest noise gets the prize. And it doesn't hurt to tell as many important people as you can (like newspapers and TV). Get your family to yell loud and clear to anyone and everyone. Make paper copies and mail them to everyone concerned. After all, since they told you it was "not necessary" it's not like you could return the PEG to WalMart and get your money back! And the fact they gave you a referral seems to imply pre-approval. Each state also has Insurance Regulators and according to the Consumer Resource Handbook, the one for Virginia is Mr. Steven T. Foster in Richmond, VA (804-786-3741. PM me if you want a more complete address. Let us know what happens.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



#53329 10-21-2007 01:53 AM
Joined: Nov 2006
Posts: 39
Contributing Member (25+ posts)
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Joined: Nov 2006
Posts: 39
Minniea,

my daughter has a mickey button because she can not meet her caloric intake. There weren't any problems initially with her mickey or her feeding supplies until we moved to a different area.

The insurance tried denying her supplies and I ended up going through 3 months of appeals against them. What doctor would install a g-tube, peg etc if it wasn't medically necessary? You have to wonder who the idiot is on the other side denying these claims. My daughter's doctor was irate with our insurance company and he was a military doctor as well as tricare which is medical insurance provided to the military by government.... His nurse personally walked into the insurance office with me to raise some stink. I told them Id be sure to be writing my congressmen, newspapers etc if they denied her again. Her feeds are atleast 75% of her nutritional needs. She is able to eat, just won't at times and she is supposed to be on a high cal, high fat diet. Anyhow, like I said after 3 months of appeals and the show in the insurance office they finally approved what she needed. Good luck to you.


Laura T T2NOMO Small Salivary Gland Cancer
#53330 10-21-2007 04:12 AM
Joined: Jul 2007
Posts: 939
"Above & Beyond" Member (500+ posts)
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Posts: 939
Minnie,

This is just rediculous...if they gave you the referral...there should be a record of it...how can they now deny it??? If the decision maker could take one look at your face and mouth, they would know the the G-tube is necessary. Once again, I would get the media involved..pictures and all and see if that pressure would work. Crazy! Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
#53331 10-21-2007 09:18 AM
Joined: Jan 2007
Posts: 735
"Above & Beyond" Member (500+ posts)
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These INs co are NUTS ..I have NO idea who runs them .. I know with mine when I was gettin approvals they would approve , they pay for my biopsy but not my pathology ,,now why would you biopsy somthing if you arent going to test it ?? Agian NO IDEA who runs these places or if they ahve any medical CLUE !


Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
#53332 10-21-2007 09:28 AM
Joined: Aug 2006
Posts: 199
Me2 Offline
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Posts: 199
Minnie - I am sure that you have called them to talk to them about it - but if you haven't been able to yet, you should. My insurance company denied payment for tests I received for my 1 year F/U saying it was out of network - when they had already paid for my surgery there and all of my other visits and tests. I called them and even though it took a while to straighten it out, it turned out to be their "mistake". Crazy, I know, but a good thing I called and made a stink!


Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!

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