#53101 06-15-2006 08:16 AM | Joined: Jul 2003 Posts: 235 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Jul 2003 Posts: 235 | Mom's dentist, at the same institution where she was treated for cancer, said that radiation treatment caused a whole bunch of cavities. From what I've read online, increased incidence of cavities isn't out of the ordinary. I was wondering if anyone had luck with Medicare, or any other insurance, paying for cavities. Thanks. Dave
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice. Died 10/13/15. What a long and difficult journey.
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#53102 06-15-2006 03:37 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Dave, since John's teeth were pulled, I can't address the cavity issue- But, I would have her Dentist write a report to the effect that radiation has caused serious problems with her teeth that need to be addressed before the condition deteriorates further. Jerry might help with the wording. Then I would call her Ins. Co. and speak to them in technical terms and tell them you have this report and need to know who to send it to.Have you had any success with her other issues? Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#53103 06-15-2006 06:01 PM | Joined: Oct 2003 Posts: 25 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Oct 2003 Posts: 25 | Been thru the process and you have to build a case that the work on your teeth was medically necessary. Seems obvious but you have to prove it. I put together file of letters from dentist, and rest of my medical team and sent letter to insurance company. Followed up with phone calls and additional update letters. Was turned down once as there dentist said this was cosmetic process. That was the mistake - stupid! After one year was reimbursed 100% for all the work. Don't give up, get the letters and follow up. Good luck.
SCC base of tongue,T1N1M0, Rad & Chemo, treatment ended 12/11/2003
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#53104 06-16-2006 03:09 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | Hi Dave, Dealing with insurance companies is one of the most difficult and frustrating tasks that I know of. I have a full time employee that handles insurance and she spends most of her time dealing with this problem. Insurance companies are in the business of making money, not spending it (on paying claims, that is). They spend their money on the top dogs and on their monumental buildings. Have you ever seen a shabby insurance company building? I guess you can see how I feel about them. Even though a claim is denied, it doesn't mean it won't eventually be paid. The first step is to try to talk to a supervisor. Most service reps that get your phone calls are very good at stonewalling you, but persistence will pay off most of the time. Another thing you need to do if coverage is denied, is to get the exact wording from the policy that they are using to deny the claim. Get it in writing. At this point, you may find that there is no chance if the wording is specific. Most of the time it will be vague and then it is worth persuing the problem further. Check out this link on this website for some good background information about the relationship of radiation, salivary glands and decay: http://www.oralcancerfoundation.org/dental/dental-complications.htm Len has some very good advice in his email and perhaps if you get to the stage of collecting supportive letters from dentists, etc. you might be able to get copies of his. Good luck and let me know if there is anything I can do. Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#53105 06-16-2006 03:44 AM | Joined: Jul 2003 Posts: 235 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Jul 2003 Posts: 235 | Thanks, everyone! JAM, things are going okay w/the other issues. Yesterday we had her throat dialated again...the third or fourth time since tx ended as she's still tube feeding. Hopefully she'll be able to begin eating orally again. Psychologically, post treatment, she's a bit different than she was before she got sick. She doesn't seem to want to take charge or be too independent. Doesn't want to make decisions whatsoever. It's odd for me, perhaps because I have no medical training or understanding of psychological/psychiatric issues, to watch someone fight so hard and survive an extremely aggressive tx only to be very blase post tx. In a nutshell, it's an ongoing recovery with many components at issue. Sorry for getting off topic.
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice. Died 10/13/15. What a long and difficult journey.
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#53106 06-16-2006 12:19 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Did she go the distance with oral hygiene care to the point of obsession, which is a requirement, for keeping your teeth & gums healthy. Radiation, in itself typically won't kill or damage your teeth. It's the lack of saliva that does the greatest harm. Did she have dental trays made? Did she do almost daily, at home, flouride treatments with presciption strength flouride? Teeth cleaning 3-4 times a year? Water Pik, floss after every meal? ALL throughout treatment.
Dental insurance should cover cavity (carrie) repairs.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#53107 06-16-2006 01:19 PM | Joined: Jul 2003 Posts: 235 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Jul 2003 Posts: 235 | Good questions, I'll have to check. Given that she hasn't been using her Therabyte regularly, to the point that the dentist can't get in her mouth to do a complete exam (the cavities he found are on her front teeth), my guess is that she hasn't been as diligent as she should be.
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice. Died 10/13/15. What a long and difficult journey.
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#53108 06-16-2006 03:19 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Didier, I feel for your Mom. My hunch is she is not blase- but really tired and I don't blame her for not wanting to make decisions that someone else could handle. My experience as a caregiver is that, for several months early on, I under-estimated the mental and physical energy John was putting forth just to get through the treatments. The energy that is required of him now, to try to survive is unmeasureable. As a caregiver, you must be tired also. Hope you are taking care of yourself. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#53109 06-19-2006 07:38 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2003 Posts: 928 | Didier...maybe she was not as diligent as she could have been but, asking her those questions now, after the fact, can only make her feel bad. She has enough to worry about. Bless you for being so diligent for her and your dad. Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#53110 06-19-2006 10:11 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Didier, I didn't pose those questions for you to confront her about it, just that knowledge is power and insurance coverage is a multidimensional thing. Your original question concerned the Medicare coverage aspect it. The trimus element is also a consideration. You have to have your ducks lined up when you confront insurance companies.
In all fairness to your mother, it took me an extraordinary committment to daily oral hygiene - and still does. The risk of ORN is for LIFE. It's like the PEG or treatment options - you have to carefully weigh out the risks and benefits of all the choices and make decisions based on that and what is achievable in reality. A relentless support system is an integral component of this.
The front teeth teeth are pretty tough, the back teeth are probably in much worse shape. I sure that Jerry can elaborate more on this.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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